Carcinoid Cancer and Neuroendocrine Tumor Patients: Where Do I Start?

There are so many questions when you are newly diagnosed with carcinoid cancer or another neuroendocrine tumor.  Where do I start to learn more about these rare cancers?  When patients or their families call the support and information line at the Carcinoid Cancer Foundation, 888-722-3132, we suggest you start by reading A Review of Carcinoid Cancer by Dr. Richard R.P. Warner, Medical Director of the Carcinoid Cancer Foundation and Professor of Medicine at the Mount Sinai School of Medicine in New York City.  The review is a detailed description of the entire spectrum of carcinoid cancer — its diagnosis, treatments and prognosis.  Click here to read the review:

And if you still have questions, another excellent resource offered on the Carcinoid Cancer Foundation’s website,, is a section devoted to Frequently Asked Questions ranging from “Are the 5-HIAA and serotonin tests conclusive for detecting a carcinoid tumor?” to “What is an Octreoscan?” to “Are all carcinoid tumors cancerous or can some be benign?”  The questions cover topics such as specific tumor locations, symptoms, treatments, and nutritional concerns.  To read the questions, click here:

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