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Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences

Several patient-oriented carcinoid seminars and conferences are held each year. In this section, you can find videos and lecture  transcripts by prominent carcinoid and neuroendocrine tumor (NETs) specialists.
These lecture transcripts, and video recordings give both simple and more in-depth information about carcinoid and other neuroendocrine tumors (NETs). We suggest that patients read and listen to these transcripts after reading the initial general information for patients.

In 2012, the Carcinoid Cancer Foundation began a new series of videos featuring carcinoid/NET specialists and patients. Read more about the series here. These videos are made possible thanks to the generosity of Kim, Heather and Lauren Simpson and other family and friends and were created in "loving memory of Cheryl Stanley Simpson of Gainesville, Florida." 

Find lectures/videos from:

Year 2012
Year 2011
Year 2010
Year 2009
Year 2008
Year 2007
Year 2006
Year 2005
Year 2004
Year 2003
Year 2002
Year 2000
Additional Simple Transcripts and Videos

 

COPYRIGHT NOTE: Direct linking to any of these transcripts, podcasts, or video recordings is prohibited.

NOTE: Videos in this section are best viewed with Adobe Flash Player.
 If you are unable to view pictures of the lecturers (from high speed broadband connection), make sure that you use Adobe Flash Player installed and that Real Player is uninstalled.

YEAR 2012

  • The ABC's of Carcinoid and Neuroendocrine Tumors

  • Faces of Hope

 

  • Surgery and Treatment Options:  Carcinoid and Neuroendocrine Tumors

 

  • Why I Became Interested in Carcinoid/NETS

What prompted carcinoid and neuroendocrine tumor specialist Dr. Eugene Woltering to become interested in these rare cancers?

YEAR 2011

  • New Jersey Carcinoid Cancer Network conference

November 5, 2011

Carcinoid/NETs:  Not Your Average Cancer

These videos are made possible through a collaborative effort of the New Jersey Carcinoid Cancer Network and the Carcinoid Cancer Foundation.

The symposium videos can be viewed here in order of presentation:

  • Introduction and Welcome, Jim Weiveris and Judy Golz
  • Richard R.P. Warner, MD (presentation is in two parts)
  • Michael Soulen, MD
  • Robert Fine, MD
  • Guiseppe Condemi, MD
  • Rodney Pommier, MD
  • Q & A

  • CCF's 14th Annual Carcinoid NETs Symposium

Mt. Sinai Medical Center, New York, NY
May 1, 2011

Neuroendocrine Tumor Management:  The Era of Personalized Medicine

Read More about the Symposium.

Due to technical difficulties the question and answer period following Dr. Wolin’s presentation is not available in a video format.

The symposium videos can be viewed here in order of the presentations:

  • Keith Warner
  • Richard R.P. Warner, MD
  • Edward M. Wolin, MD
  • Eugene A. Woltering, MD
  • Q & A with Dr. Woltering
  • Patient Panel moderated by Gilles Frydman

YEAR 2010

  • International Carcinoid NET Conference and Symposium for Patients and Medical Professionals 

Vancouver, British Columbia, Canada

May 13-16, 2010

With kind permission from the Canada NeuroEndocrine Tumor Society CNETS, we present NeuroEndocrine Cancers: Networks of Expertise. The conference featured distinguished neuroendocrine cancer experts from Canada, the United States, the United Kingdom, Ireland, the Netherlands, and Sweden. All lectures except for two are reproduced here. Those lectures will be released at a later date.   

View lectures here

  • CCF's 13th Annual Carcinoid NETs Symposium

Mt. Sinai Medical Center, New York
April 11, 2010

Determining Molecular Signature:  A Guide for Targeted Therapy of Neuroendocrine Tumors

Imagine a treatment created just for you as a carcinoid or other neuroendocrine tumor patient based upon a personalized genomic analysis.  This is the cutting-edge research which is the focus of the work of Michael J. Demeure, MD, MBA, and his team at TGen, the Translational Genomics Research Institute, based at the Virginia G. Piper Cancer Center, Scottsdale Healthcare, in Arizona.  Dr. Demeure talked about this research when he was the guest speaker for the Carcinoid Cancer Foundation’s symposium.

 

YEAR 2009

  • 2009 National Carcinoid/NET Patient Conference

New Orleans, Louisiana
September 24-25, 2009

The Carcinoid Cancer Awareness Network (CCAN) in association with Ochsner Medical Center, Kenner held the 2009 National Carcinoid / NET Patient Conference at the Astor Crowne Plaza Hotel in New Orleans in September. The conference was attended by some 500 patients, family members, caregivers, and physicians.

With kind permission from the Carcinoid Cancer Awareness Network we present video recordings from the conference.

View the video here.

  • CCF's 12th Annual Carcinoid NETs Symposium

Mt Sinai Hospital New York, NY
April 2009
ON THE CUTTING EDGE
The theme of the lectures were advances in surgical care for carcinoid and neuroendocrine tumors. The talk featured presentations by distinguished guest speakers Dr. Philip J. Boudreaux, Surgeon and Professor of Surgery at Louisiana State University Hospital School of Medicine (in Kenner, Louisiana) and Dr. Rodney F. Pommier, Surgeon and Professor of Surgery at Oregon Health Sciences University Cancer Institute (in Portland, Oregon). 


View video
View photo/slide show

YEAR 2008

  • With kind permission from the Canada Neuro-Endocrine Tumor Society CNETS, we present video recordings from their first International Carcinoid Neuroendocrine Conference for Patients and Medical Professionals in Toronto, Ontario, Canada on October 16 - 19, 2008

Listen to lectures

  • Video recordings of lectures from the Carcinoid Cancer Foundation's (CCF) 11th Annual Carcinoid/NET's Conference

"Progress in Research and Treatment"
April 13, 2008 at Mount Sinai Hospital New York, NY
Guest Speakers:
Herbert Chen, MD, Madison, WI

Andrew S. Kennedy, MD, Cary, NC

Listen to lectures

  • Webcasts from NANETS' first Professional Conference, February 8-9, 2008, Southampton, Bermuda.

Current Management Strategies
When NET diseases have advanced, what treatments are most effective? Experts in the field are continually improving treatment strategies and developing new approaches to symptom control.

Webcast

YEAR 2007

"Providing Empowerment of Knowledge Together For Life and the Quality of Life"
Thursday, September 27 – Sunday, September 30, 2007
Sheraton Waterside Norfolk Hotel

Norfolk, Virginia

View the conference recordings

  • Carcinoids: The Slow Pace of Rapid Progress

April 2007
Presented by the Carcinoid Cancer Foundation.
Mount Sinai Hospital, New York, NY

This conference was for patients, family, friends and medical professionals. Our guest speaker was Dr. Irvin M. Modlin from Yale University School of Medicine, New Haven, CT.

Most of the content of his presentation was recently published. Access the article
Additional medical journal publications by Dr. Modlin are available in abstract form from PUB MED

YEAR 2006

  • 3rd Annual Carcinoid Cancer Awareness Network (CCAN) conference
    November 11, 2006, Long Island, NY.

Listen to Drs. Gerstein, Goldsmith,Woltering,Warner,Vinik and Gardner lecturing on "The Diagnosis and Treatment of Carcinoid Cancer / NET Tumors"

View the conference recordings
Visit the CCAN website

  • National Carcinoid/NETs conference in Portland, OR
    September 2006 
Portland, OR 2006
    To view the conference recording, click here
    Note: These video recordings can ONLY be viewed in Internet Explorer.

Acknowledgment: Production of these video recordings was made possible by a generous educational grant from NOVARTIS ONCOLOGY.

One full set of DVDs and CD-ROMS will be produced and distributed to all support groups in time. Please note that it is a very complex and time-consuming process to produce these video recordings and DVDs or CD-ROMS. Remember that when done you will have access to 30 lectures by the world's leading carcinoid/NET specialists. We appreciate your patience.

View the evaluation and comments by a patient attending the conference.

This event was coordinated and executed by Kari Brendtro and Corie Dean from the Pacific Northwest (PNW) carcinoid/NET support group and cosponsored by The Carcinoid Cancer Foundation.

What’s Tried and True – What’s New?
A symposium for patients, caregivers, family, friends, & medical professionals
Guest Speaker: James C. Yao, MD, MD Anderson Cancer Center, Houston, TX

Access video recordings

YEAR 2005

View video recordings

YEAR 2004

  • Carcinoid Conference 2004 (video recording)
    In New Orleans, LA
    September 23-24, 2004
  • This conference was designed to make patients with this rare disease aware of the most recent medical information concerning the diagnosis and management of their tumors. The fourteen speakers included the world experts on carcinoid and carcinoid syndrome.These individuals presented the latest, often unpublished, updates on these tumors.
    • “This conference represents the cutting edge of medical information dispersal. Getting life saving information to patients with this exceedingly rare disease allows the patient to educate their local doctors rather than the usual paradigm in which physicians are the ones with the knowledge.”
  Dr. Eugene Woltering of LSUHSC

    Presentations by (1. Physicians in order of appearance): Drs. Larry Hollier, Eugene Woltering, Richard Warner, Thomas M. O'Dorisio, Lowell Anthony, Larry Kvols, Louis Linares, Daniel Frey, Jay Thomas, (2. other nonphysician contributors); Gregory Espenan; Mary Hardy; Barbara Schwerin,JD; Leigh Anne Geisler Burns, LDN/RD; Charles Kerwood )

YEAR 2003

  • Carcinoid Treatment Today and Tomorrow:
    Carcinoid Conference 2003
    (for Carcinoid Patients, Caregivers, Family, and Friends) Coordinated by California Carcinoid Fighters (CalCF)
    Saturday October 25, 2003
    Santa Ana, CA
    Guest Speakers:
    Larry Kvols MD, Kjell Öberg MD,Thomas O'Dorisio MD, Rodney Pommier MD, Richard Warner MD, Eugene Woltering MD
    READ TRANSCRIPTS:
  • Carcinoid Case Presentation and Discussion – The American Perspective
    Dr. Richard R P Warner
    Department of Medicine, Gastrointestinal Division, The Mount Sinai School of Medicine,
    One Gustave L. Levy Place, New York, NY 10029, USA

    Presented at the ENET meeting in London, May 2003

Abstract
The rationale underlying an aggressive approach in the management of some carcinoid patients is explained and illustrated by the presented case of a middle-aged man with advanced classic typical midgut carcinoid. The patient exhibited somatostatin receptor scintigraphy positive massive liver metastases, Carcinoid Syndrome, severe tricuspid and pulmonic cardiac valve disease with congestive heart failure, ascites, and malnutrition. He had been treated for several years with supportive medications and biotherapy including octreotide and alpha interferon but his tumor eventually progressed and his overall condition was markedly deteriorated when he first sought more aggressive treatment. This consisted of prompt replacement of both tricuspid and pulmonic valves, followed by hepatic artery chemoembolus injection and then surgical tumor debulking including excision of the primary tumor in the small intestine. In addition, radiofrequency ablation was utilized to reduce the volume of metastases in the liver. Prophylactic cholecystectomy was also performed and a biopsy of tumor was submitted for cell culture drug resistance testing. This was followed by systemic chemotherapy utilizing the drug (docetaxel) which the in vitro studies suggested as most likely to be effective. His excellent response to this succession of treatments exemplifies the successful application of aggressive sequential multi-modality therapy.

  • Diagnosing and Treating Carcinoid
    Transcript of lecture from the METRO NY Carcinoid Support Group meeting
    Sunday, April 27, 2003
    Mt Sinai Hospital, NY
    The Dana-Farber Experience
    Guest Speaker: Matthew Kulke MD,
    Assistant Professor of Medicine Department of Medical Oncology
    Dana-Farber Cancer Institute, Boston

Year 2002

  • METRO NY Carcinoid Support Group Tri-State Meeting
    January 13, 2002
    Mount Sinai Hospital, NYC
    2002 Annual Update and Review of Carcinoid Disease
    Presented by Richard R.P.Warner MD
    Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and
    Clinical Associate Professor of Medicine, Weill Medical College of Cornell University, New York, NY, 
and Medical Director, Carcinoid Cancer Foundation, Inc.
  • Carcinoid Wellness Conference

    March 9, 2002
    Memorial Medical Center

    New Orleans, LA
  • "Introduction to the Basic Sciences of Carcinoid"
    Presented by Eugene Woltering MD FACS
    The James D. Rives Professor of Surgery and Neuro Sciencece
    Chief, Section of Surgical Endocrinology,
    Director Of Surgical Research The Louisiana State Health Science Center, New Orleans, LA
  • Carcinoid Symposium 2002
    Tampa, Florida
    April 12-13, 2002

    Coordinated by Dianne Comstock, R.N., M.Ed. and Rhonda Ryan RN

    Made possible by an educational grant from Norvartis Oncology

YEAR 2000

  • National Carcinoid Symposium 2000
    Sarasota, Florida
    May 11, 2000

    Coordinated by Dianne Comstock, R.N., M.Ed.
    Made possible by an educational grant from Norvartis Oncology and sponsored by the The Wellness Community-Southwest Florida

 

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