Welcome to Carcinoid.org

We've built this site to include the most comprehensive and up-to-date repository of information about carcinoid and neuroendocrine tumors. You should be able to find just about any information you're seeking about these diseases, including information about doctors, support groups, treatment, clinical trials and a wide variety of resources. Please take your time on our site, visit us often and feel free to provide us with your feedback or requests for information you would like to see on this site.

Kari's Story

An incredibly inspiring video created to bring about greater awareness of carcinoid and NET (neuroendocrine tumor) cancer. Humor, strength, adventure, hope -- this is Kari's story.

Double click on the video to see it in a larger size.

Spotlight on The Unicorn Foundation

Seeking to raise awareness of NET cancers and funds for research, The Unicorn Foundation is the only nonprofit medical charity dedicated to the needs of Australian NET survivors. Meet Dr. John Leyden, Chairman of the Foundation; Kristen Leknius, NET patient; Professor Rod Hicks, Peter MacCallum Cancer Centre; and Robert Doyle, Lord Mayor of Melbourne. Click here to read more about The Unicorn Foundation.

Double click on the video to see it in a larger size.

The Carcinoid Cancer Foundation pledges to continue working to bring about greater awareness of carcinoid and NET cancers; to educate the medical community and the general public to look for, diagnose, and treat these diseases early; and to serve as advocates for the carcinoid/NET community throughout the world. We hope that 2012 will bring many advances in carcinoid/NET cancer research.

This website and the educational, awareness, support, and advocacy activities of the Carcinoid Cancer Foundation are made possible by your contributions.

Thank You!

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New Support Group Forming in Mobile, Alabama

If you are a NET cancer survivor, caregiver, family member or friend living in the Mobile, Alabama area, the 1st Neuroendocrine Cancer Support Group Meeting will be held on Saturday, February 4 at 2:00 pm at the Mobile Infirmary Medical Center Auditorium. Click here to learn more about the meeting and to RSVP by January 27.

Registration Now Open for 2012 National NET Patient Conference

Registration is now open for the 2012 National NET Patient Conference to be held September 20 – 22, 2012 in New Orleans, Louisiana. This is an excellent opportunity to get information about NETs from nationally and internationally recognized carcinoid/NETs specialists. Whether you are newly diagnosed or have been living with a NET for many years, you will leave the conference with timely information and be a better advocate for yourself. In 2009 this conference was sold-out with 500 in attendance!!! Guests will stay at the Astor Crowne Plaza in the heart of the French Quarter, where Canal Street meets Bourbon Street, and you are steps away from world-renowned dining and the amazing sounds of New Orleans' Jazz or Blues. Click here for more information and to register: http://conta.cc/zgB5hV.

HealthWell Foundation Reopens Program for Carcinoid

IMPORTANT NOTICE, January 13, 2012: The HealthWell Foundation, which assists with numerous disease states and their medications, has reopened its fund for Carcinoid Tumors and Symptoms Related to Carcinoid Tumors. This is a first-come, first-served program.

What does the HealthWell Foundation do? It provides financial assistance to eligible individuals to cover coinsurance, copayments, healthcare premiums and deductibles for certain treatments. To determine eligibility for the program, click here.

For further information, visit the HealthWell Foundation’s website, http://healthwellfoundation.org/, or call (800) 675-8416, 9:00 am to 5:00 pm Monday through Friday, Eastern Time. E-mail inquiries can be sent to info@healthwellfoundation.org.

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