Latest News

Josh Mailman Receives 2015 Warner Advocacy Award

Congratulations to Josh Mailman upon being selected as the 2015 Warner Advocacy Award recipient!! We're so excited to see Josh recognized for Excellence in NET Patient Advocacy. The award was established by Novartis Oncology in 2009 to commemorate the life and work of Monica Warner. Read more about Josh and the award.

Luncheon with the Experts in NYC, December 6

Join carcinoid and neuroendocrine tumor patients in New York City on Sunday, December 6, 2015 for a unique opportunity to have lunch with three medical experts. Share your experiences with others who have similar concerns and hear from physicians on issues ranging from NET cancer treatments and surgery to follow-up testing and new developments. Read more and make your reservation

Go Zebra Striped on Social Media This November

In anticipation of Worldwide NET Cancer Awareness Day on November 10 and throughout the month of November, the Carcinoid Cancer Foundation, with support from Advanced Accelerated Applications, aims to increase awareness of neuroendocrine tumors (NETs) and carcinoid cancer by offering a social media photo filter to enable you, your family and friends to Go Zebra-Striped. Read more 

Smart Patients Carcinoid and Neuroendocrine Tumor Community

The Carcinoid Cancer Foundation is excited to announce a new online community for carcinoid and neuroendocrine tumor (NET) patients, their families and friends. We are partnering with Smart Patients to build this community and hope that combining CCF's experience educating patients about carcinoid and NET cancers with Smart Patients’ experience with online peer support will result in more patients getting information they need even faster. Join Smart Patients, ask a question, and support others who can learn from you: www.smartpatients.com/carcinoidRead more

Surviving Carcinoid Cancer for More Than 3 Decades

Marilyn Thurston of Colorado may be the longest-surviving carcinoid patient in the United States and possibly the world, having been diagnosed over 30 years ago.  Her physician, Dr. Nicholas DiBella, created a special pin recognizing her tenacity. In 1986, Marilyn participated in the first clinical trial for Sandostatin.

Special thanks to Amy Matthew of The Pueblo Chieftain for sharing Marilyn's story of hope and positivity.  Read the article here.