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CCF Awards Grant to Stanford University

The Carcinoid Cancer Foundation has awarded a grant of more than $65,000.00 to Stanford University in California to expand access to its Gallium-68 (Ga-68) DOTA-TATE PET/CT program for carcinoid and neuroendocrine tumor (NET) patients with somatostatin receptor positive tumors. Read more

Zebra Talk Handbook

Zebra Talk is a terrific new resource for carcinoid and neuroendocrine tumor patients and their primary care physicians. According to Suzi Garber of Bucks County, Pennsylvania, editor, the handbook “is intended as a reference for those newly diagnosed with NETs (neuroendocrine tumors), in the process, or hoping to explore this bewildering world. It is also a guide to resources that can empower patients through knowledge and the mentorship of others to make informed decisions for medical care.” Read more

New OncLive TV Series Focuses on Pancreatic Neuroendocrine Tumors

In this new OncLive TV series, moderator Matthew Kulke, MD, leads a panel discussion on the treatment of pancreatic neuroendocrine tumors, with a focus on the effective sequencing of treatment options.  The panel of experts consists of: Rodney F. Pommier, MD, Oregon Health and Science University; Jonathan R. Strosberg, MD, Moffitt Cancer Center; and Diane Reidy Lagunes, MD, Memorial Sloan-Kettering Cancer Center.  Read more and watch the videos.

2014 National NET Cancer Patient Conference, Registration Open

Carcinoid and NET (neuroendocrine tumor) cancer patients, caregivers and family members, as well as physicians and other health professionals, have a unique opportunity to learn more about NET cancer, including the latest information about diagnosis and treatments, and to network with hundreds of others who share similar concerns and experiences when the 2014 National NET Patient Conference is held in Charlotte, North Carolina from Thursday, September 18 to Saturday, September 20, 2014.  There will also be a special conference on lung carcinoid and DIPNECH on Sunday morning, September 21.  Whether newly diagnosed or living with a NET for many years, this conference will feature up-to-the-minute information as well advice from specialists on the leading issues faced by NET patients. Read more

 

Nutrition and Neuroendocrine Tumors

What is a healthy diet for neuroendocrine tumor patients? If a NET patient has carcinoid syndrome which foods should be avoided? Are supplements recommended for carcinoid/NET patients? When NET patients have problems related to malabsorption and various therapies, what changes should be made in their diet? These are among the many questions answered by Jeffrey I. Mechanick, MD and Leigh Anne Kamerman Burns, RD, CDN in the Carcinoid Cancer Foundation’s new video, Nutrition and Neuroendocrine Tumors.

Surgery and Treatment Options for NET Cancers

What are the surgical and treatment options for carcinoid and neuroendocrine tumor patients?  For patients with tumors that have spread to the liver which therapies should be used to improve quality and quantity of life?  How do patients benefit from clinical trials?  There is an explosion of technologies coming not only in the diagnostics but also in the treatments of these rare cancers.  View the latest video from the Carcinoid Cancer Foundation:http://bit.ly/VcJXgz

Surgery and Treatment Options for Neuroendocrine Cancer Pations