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Songs for Life -- Please Vote for Giovanna Imbesi's "Hush"

While recovering from surgery for carcinoid cancer in 2006, Giovanna Imbesi used her amazing talents to compose “Hush,” featuring Toni Peete.    Giovanna has donated “Hush” to Songs for Life to help raise awareness of carcinoid and neuroendocrine tumor (NET) cancers. Songs for Life is a new contest to support cancer research. Voting is taking place on Facebook through November 30, 2014.  Read more

NET Patient's Perspective on Integrative Oncology

“A Patient’s Perspective on Integrative Oncology:  Getting Past the ‘War,’ Living with and Beyond Cancer” by Josh Mailman has been published in the November 2014 issue of the Journal of the National Cancer Institute Monographs focused on Integrative Oncology.  Diagnosed with a metastatic neuroendocrine tumor (NET) of the pancreas 8 years ago, Josh has chosen to combine conventional medical treatments for NETs with complementary care, including stress relief, managing fatigue following conventional  treatments, and diet. Read more

Luncheon with Carcinoid and Neuroendocrine Tumor Experts

The Big Apple Noids support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Lunch with the Experts on Sunday, December 14, 2014 in New York City. This is a unique opportunity to share experiences with others who have similar concerns and to hear from expert physicians in an informal setting on issues ranging from NET cancer treatments and surgery to follow-up testing and new developments. Read more

US Results from First Global NET Patient Survey

The Carcinoid Cancer Foundation and the Caring for Carcinoid Foundation, member organizations of the International Neuroendocrine Cancer Alliance (INCA), together with Novartis Pharmaceuticals Corporation, have announced US results from the first global survey of patients with neuroendocrine tumors (NETs). According to the survey, the vast majority (74%) of patients in the United States with NETs reported their quality of life was negatively affected by their disease. These quality-of-life findings are the first in a series of results from the survey being released in conjunction with Worldwide NET Cancer Awareness Day, November 10. Click here to read more.

CCF Awards Grant to Stanford University

The Carcinoid Cancer Foundation has awarded a grant of more than $65,000.00 to Stanford University in California to expand access to its Gallium-68 (Ga-68) DOTA-TATE PET/CT program for carcinoid and neuroendocrine tumor (NET) patients with somatostatin receptor positive tumors. Read more

Nutrition and Neuroendocrine Tumors

What is a healthy diet for neuroendocrine tumor patients? If a NET patient has carcinoid syndrome which foods should be avoided? Are supplements recommended for carcinoid/NET patients? When NET patients have problems related to malabsorption and various therapies, what changes should be made in their diet? These are among the many questions answered by Jeffrey I. Mechanick, MD and Leigh Anne Kamerman Burns, RD, CDN in the Carcinoid Cancer Foundation’s new video, Nutrition and Neuroendocrine Tumors.

Surgery and Treatment Options for NET Cancers

What are the surgical and treatment options for carcinoid and neuroendocrine tumor patients?  For patients with tumors that have spread to the liver which therapies should be used to improve quality and quantity of life?  How do patients benefit from clinical trials?  There is an explosion of technologies coming not only in the diagnostics but also in the treatments of these rare cancers.  View the latest video from the Carcinoid Cancer Foundation:http://bit.ly/VcJXgz