Tag: rare cancers

Susan Anderson’s Book, Becoming Sunny Susan

Becoming Sunny Susan: A Carcinoid Survivor’s Memoir

June 20, 2013

“My story is one many of you can identify with – an uplifting look at a life that I am determined to live well, despite all of the obstacles that I have been dealt,” says “Sunny Susan” Anderson about her new book, BECOMING SUNNY SUSAN. “At the heart of the story…

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Matthew Kulke, OncTV, Biomarkers

OncLive TV Releases 2 More Videos in Neuroendocrine Tumors Series

April 1, 2013

Two new videos have been released in the OncLive TV series on carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors, and genetic syndromes that predispose people to develop pancreatic NETs such MEN1 (multiple endocrine…

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Matthew Kulke, MD

New OncLive TV Series Focuses on Neuroendocrine Tumors

March 24, 2013

Carcinoid and neuroendocrine tumors (NETs), including pancreatic neuroendocrine tumors and even more uncommon NETs such as goblet cell carcinoid and mixed adenocarcinomas, are discussed by a panel of medical experts in this new video series from …

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Inspire Pancreatic Neuroendocrine Tumor Support Community

New Online Pancreatic Neuroendocrine Tumor (pNET) Support Community

March 16, 2013

There’s a wonderful new resource for pancreatic neuroendocrine tumor (pNET) patients and their loved ones at Inspire, the creator of online health and wellness communities for patients and caregivers, in partnership with national patient advocacy…

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Cheryl Stanley Simpson

New Videos in Carcinoid Cancer Foundation 2012-2013 Series

December 26, 2012

Faces of Hope and Surgery and Treatment Options are the newest videos in the Carcinoid Cancer Foundation’s 2012-2013 series.  Awareness and education are the first critical components in the fight against carcinoid and NET (neuroendocrine …

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NET Cancer Day Zebra Cartoon Brings Awareness to Rare Cancers

10 Highlights of the Year 2012 for the Carcinoid and Neuroendocrine Tumor Community

December 20, 2012

As the Carcinoid Cancer Foundation looks back on the year 2012, there were many significant events and advances for the carcinoid and neuroendocrine tumor (NET) community.  Here are 10 of the year’s important stories:

1)       NET Cancer Day, November

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Susan Anderson Selected as Winner of 2012 Warner Advocacy Award

“Sunny Susan” Anderson Wins 2012 Warner Advocacy Award

December 11, 2012

When “Sunny Susan” Anderson began her search on the Internet in 1995 for information about carcinoid cancer little did she realize that she would later create the first carcinoid patient website and become an extraordinary advocate for others seeking…

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Pablo Lapuerta, MD

Lexicon Pharmaceuticals Begins Phase 3 Clinical Trial of Telotristat Etiprate in Patients with Carcinoid Syndrome

December 4, 2012

Patients with metastatic carcinoid syndrome will have the opportunity to participate in a new Phase 3 clinical trial of Lexicon Pharmaceutical’s telotristat etiprate (LX1032), an oral drug candidate designed to treat carcinoid syndrome by reducing…

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Eric Liu, MD

Archived Neuroendocrine Tumor Webinar by Dr. Eric Liu Now Available

November 16, 2012

Dr. Eric H. Liu, Director of the Neuroendocrine Center and Director of Surgical Services at Vanderbilt University Medical Center in Tennessee, presented a live webinar on August 22, 2012 entitled Imaging of Neuroendocrine Tumors and Obstacles to Diagnosis.

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Magnus Essand

A Possible Cure for Neuroendocrine Cancer — It Can Be Named for You or a Loved One

September 1, 2012

For $1.6 million (1 million pounds) an oncolytic virus that has the potential to cure neuroendocrine cancer can be named for the donor.  At Uppsala University in Sweden researchers are ready to start a clinical trial for up to 20 NET (neuroendocrine tumor)…

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