Tag: rare cancers

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2014 National NET Cancer Patient Conference — Registration Now Open

January 30, 2014

Carcinoid and NET (neuroendocrine tumor) cancer patients, caregivers and family members, as well as physicians and other health professionals, have a unique opportunity to learn more about NET cancer, including the latest information about diagnosis…

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Mobile Survey for Carcinoid Syndrome Community

January 16, 2014

Carcinoid syndrome patients, caregivers, and advocates in the carcinoid syndrome community are invited to participate in an exclusive mobile survey being conducted by WEGO Health via Truvio.

WEGO Health is an organization committed to empowering…

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telotristat etiprate clinical trial

Discover Something New in Carcinoid Syndrome

November 11, 2013

For patients who suffer from carcinoid syndrome – with symptoms such as diarrhea, frequent bowel movements, abdominal pain, and flushing – that is not adequately controlled by their current somatostatin analog therapy, there is an opportunity to participate…

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richard r p warner md

New Jersey Carcinoid Cancer NETwork Conference in November, Registration through October 16

October 2, 2013

Three of the country’s leading carcinoid and neuroendocrine cancer specialists will be featured speakers for the New Jersey Carcinoid Cancer NETwork Conference. to be held on Saturday, November 2, 2013 at the Crowne Plaza in Edison, New Jersey.  Carcinoid/NETs: 

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2nd Annual Dean Paras Memorial Cross Country Run/Walk for Neuroendocrine Cancer Research

September 20, 2013

Run, walk, or cheer on all participating in the 2nd Annual Dean Paras Memorial 5K on Sunday, October 13th at University School in Hunting Valley, Ohio.  In-person registration begins at 11:30 am and the Run/Walk starts at 1:00 pm.  Michael Papanikolaou

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Remembering Dr. Martin Luther King and Sharing the Carcinoid Cancer Foundation’s Dream

August 28, 2013

Fifty years ago today, August 28, 1963, the Rev. Dr. Martin Luther King gave his historic speech, “I Have a Dream.”  That enormously powerful speech, http://youtu.be/smEqnnklfYs, still resonates with people decades later. As we listened to Dr. King’s…

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Coming Soon — New Feature on Carcinoid Cancer Foundation Website

August 8, 2013

The Carcinoid Cancer Foundation welcomes feedback from the carcinoid/NET community so that we can regularly update our website, providing the most sought- after and up-to-date information possible.  Recently we were asked to add a feature to our Find

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Carcinoid Cancer Foundation Releases Nutrition and Neuroendocrine Tumors Video

July 31, 2013

What is a healthy diet for neuroendocrine tumor patients?  If a NET patient has carcinoid syndrome which foods should be avoided?  Are supplements recommended for carcinoid/NET patients? When NET patients have problems related to malabsorption and…

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maria gonzalezs book but you look so good

But You Look So Good . . . Stories by Carcinoid Cancer Survivors

June 28, 2013

The intimate stories of those living with a poorly understood and rare cancer are shared in Maria Gonzalez’s new book, But You Look So Good . . . . Stories by Carcinoid Cancer Survivors. Over 20 patient and caregiver stories explore how carcinoid and neuroendocrine…

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warner advocacy award 2013 call for nominations

Call for Nominations: 2013 Warner Advocacy Award

June 21, 2013

Novartis Oncology has announced the 2013 Warner Advocacy Award, named in honor of  the late Monica Warner, a driving force behind the Carcinoid Cancer Foundation for two decades and extraordinary advocate for carcinoid and neuroendocrine tumor patients.…

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