Tag: neuroendocrine tumors

13th Anniversary of First Carcinoid Patient Website: Kudos to Susan Anderson

When she was finally diagnosed with carcinoid cancer in 1995, Susan Anderson had already spent 8 years trying to find out what was the cause of her “anemia,” pain, and losing 62 pounds in 6 months.  Little did she realize that diagnosis would also result …

Carcinoid & NET Patients: Free Webinar about Access to Health Care and Navigating Insurance

The Cancer Legal Resource Center  invites you to participate in a free 90-minute teleconference and webinar on “Access to Health Care and Navigating Insurance” to better understand the legal rights of health care consumers and how to become…

Carcinoid & Neuroendocrine Cancer Conference Presented by CCAN Now Online

If you missed the carcinoid and NET conference presented by the Carcinoid Cancer Awareness Network in November, you can now view it online.  And if you want to hear some great presentations again, click here.

The guest speakers and their presentations …

Clinical Trial Recruiting Neuroendocrine Tumor Patients with Pheochromocytoma or Paraganglioma

Neuroendocrine tumor patients with malignant pheochromocytoma or paraganglioma are being sought for a multi-center clinical trial conducted by Molecular Insight Pharmaceuticals, Inc. In the New York area, one of the clinical trial sites is the Mount…

Neuroendocrine Tumor and Carcinoid Cancer Patients: Please Participate in This Poll

The Carcinoid Neuroendocrine Tumor Society of Singapore (CNETS Singapore) has created a one question poll on NET Patient Misdiagnosis.  We need your help and only 60 seconds of your time to hit the 200 mark for responses to the poll.  There are already …

Canadian Report Card on Cancer Features Carcinoid and Neuroendocrine Cancers

An article by Maureen Coleman, President of the Carcinoid Neuro-Endocrine Tumour Society (CNETS) Canada www.cnetscanada.org, on carcinoid and neuroendocrine cancers is featured in the rare cancers section of the 2009-2010 Report Card on Cancer …

Carcinoid Cancer Foundation Presents Symposium on Cutting-Edge Treatment

Determining Molecular Signature:  A Guide for Targeted Therapy of Neuroendocrine Tumors

Imagine a treatment created just for you as a carcinoid or other neuroendocrine tumor patient based upon a personalized genomic analysis.  This is the cutting-edge…

Worldwide Neuroendocrine Tumor (NET) Cancer Awareness Day: November 10, 2010

An extraordinary, first of its kind event is planned for November 10, 2010: Worldwide NET (neuroendocrine tumor) Cancer Awareness Day.  Leaders of carcinoid/NET patient support and advocacy groups from throughout the world have been brought together…

Carcinoid Cancer Foundation Thanks Silja Chouquet

During a recent meeting in Berlin of the international Steering Committee for Worldwide NET Cancer Awareness Day (WNCAD) on November 10, 2010, Grace Goldstein of the Carcinoid Cancer Foundation had the opportunity to hear a fascinating presentation…

More Information from “The Insurance Warrior” Now on Carcinoid Cancer Foundation Website

Insurance coverage for medical treatments and prescription drugs is a critical issue for carcinoid cancer and neuroendocrine tumor patients.  The Carcinoid Cancer Foundation is delighted to partner with Laurie Todd, “The Insurance Warrior,” to …