Search Results for: carcinoid syndrome

You, Dr. Warner, and Dr. Woltering prescribe different dosages of Sandostatin – what the pros and cons of each approach?

October 17, 2015

Dr. Woltering stands somewhat alone in his use of huge doses of Sandostatin. Based on his research observations he feels that very large doses inhibit carcinoid tumor cell growth whereas conventional doses inhibit hormone production, release and effect…

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Does the body build up a tolerance to Sandostatin LAR or IR over time so that it becomes less effective?

October 17, 2015

Usually NOT. It may infrequently produce antibodies that make it less effective, but this is in only a very small minority of cases. In some other cases it becomes less effective AT THE SAME DOSAGE because the tumors are growing. In most cases it is better…

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In your editorial section on treatment, liver transplant “in very special selected cases” is mentioned; what are those cases?

October 17, 2015

The reported world experience with liver transplant for carcinoid indicates that the outcome in general is as good but no better than that resulting from the best combination of multimodality treatment ( i.e. Octreotide/Sandostatin, Hepatic Artery…

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Would you consider amending your recommendation of supplementing one’s diet with niacin to supplementing with niacinamide?

October 17, 2015

Niacin synthesis is deficient in carcinoid syndrome because of metabolic diversion of its precursor, tryptophan, to form serotonin.  In some untreated individuals this can even lead to pellagra.  Hence the recommendation for niacin supplementation. …

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Could you give me a brief description of Creon and Pancrease, and the benefits of each?

October 16, 2015

They are both pancreatic extracts of animal active origin, made by different manufacturers, and are roughly equal in effectiveness.  They come in several strengths and each include lipase, amylase and protease (enzymes that break down fats, carbohydrates…

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A Review of Neuroendocrine Cancer

October 15, 2015

This document was prepared in order to further the Carcinoid Cancer Foundation’s educational goals and inform you about the existence and characteristics of neuroendocrine cancer. While the information contained herein represents up-to-date…

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Newly Diagnosed: The Basics

October 15, 2015

Carcinoid cancer and related neuroendocrine tumors (NETs) are small, slow growing tumors found mostly in the lungs  and gastrointestinal system, but can be in other parts of the body such as the pancreas. Since most of these grow very slowly, compared…

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Our Founder

July 20, 2015
Richard R.P. Warner, MD, Founder and Medical Director Emeritus of the Carcinoid Cancer Foundation and Retired Director of the Center for Carcinoid and Neuroendocrine Tumors at Mt. Sinai Hospital

Dr. Richard R.P. Warner, along with his patients and …

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Michael Farris Fox 4 TV coverage

Denied: Michael Farris’ Journey with Insurance for Neuroendocrine Cancer Treatment

June 10, 2015

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught…

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michael farris golden rule

DENIED: Michael Farris’ Journey with Insurance for Neuroendocrine Cancer Treatment

June 8, 2015

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught…

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