Carcinoid Cancer Foundation Releases New Video Series Beginning with “The ABC’s of Carcinoid/NETs”
What is the most common kind of neuroendocrine tumor (NET)? How do these tumors grow? What is carcinoid syndrome? What are the quality of life issues for patients? In “The ABC’s of Carcinoid/NETs,” three of the world’s leading carcinoid and NET cancer specialists – Dr. Richard R.P. Warner, Dr. Edward M. Wolin, and Dr. Eugene A. Woltering – talk about the advice they offer their patients, the advances they have seen during their careers, and what they anticipate will be available for NET patients in the future.
If you or a loved one were newly diagnosed with carcinoid cancer or another neuroendocrine tumor, such as a pancreatic neuroendocrine tumor (pNET), what would you want to know about these rare diseases? What information would you like to share with your local doctor? Learn more in the first video of the Carcinoid Cancer Foundation video series.
Faces of Hope
Meet NET cancer survivors Claire, Josh, Judy, Kathy, Kenneth, and “Sunny” Susan as they share their journeys about being diagnosed and living with rare neuroendocrine tumors, including lung carcinoid, carcinoid of the ileum, and pancreatic neuroendocrine tumors.
Surgery and Treatment Options
What are the surgical and treatment options for carcinoid and neuroendocrine tumor patients? For patients with tumors that have spread to the liver which therapies should be used to improve quality and quantity of life? How do patients benefit from clinical trials? There is an explosion of technologies coming not only in the diagnostics but also in the treatments of these rare cancers.
According to the latest research, 28% of all carcinoids occur in the lung. What are the symptoms of lung carcinoid? Do these tumors cause carcinoid syndrome? Learn more from carcinoid and neuroendocrine tumor experts about imaging and surgery for lung carcinoids. Meet two lung carcinoid survivors, Kenneth and Kathy. Kenneth has completed more than a dozen marathons since he had his lung removed. Read an inspiring story about lung carcinoid survivors here:https://carcinoid.wordpress.com/2011/08/17/two-lung-carcinoid-survivors-inspire-and-lead-the-way/
Nutrition and Neuroendocrine Tumors
What is a healthy diet for neuroendocrine tumor patients? If a NET patient has carcinoid syndrome which foods should be avoided? Are supplements recommended for carcinoid/NET patients? When NET patients have problems related to malabsorption and various therapies, what changes should be made in their diet? These are among the many questions answered by Jeffrey I. Mechanick, MD and Leigh Anne Kamerman Burns, RD, CDN.
Living Well with Carcinoid and Neuroendocrine Tumors
Work with a multidisciplinary team, educate yourself, seek out online support groups, find physicians who know how to treat you, focus on achieving the best quality of life possible — these are some of the suggestions offered by carcinoid and neuroendocrine tumor specialists and patients. “Living Well with Carcinoid and Neuroendocrine Tumors” provides insights into being diagnosed with rare diseases and physicians’ guidance for their patients.
These videos, made possible by the generosity of Kim, Heather and Lauren Simpson and other family and friends, have been created “In loving memory of Cheryl Stanley Simpson (pictured below) of Gainesville, Florida. Cheryl was a loving and incredible wife, mother, sister, daughter, teacher and friend. May her courage and dignity in fighting carcinoid cancer and this program help save the life of someone else in her memory.”
Throughout this unique series the focus is on topics of importance to the carcinoid and neuroendocrine tumor community including surgery and treatment options, lung carcinoid, nutrition, and living well with NET cancer.
Awareness and education are the first critical components in the fight against carcinoid and NET cancers. Early detection and diagnosis can both enhance the quality of patients’ lives and extend their lives. The Carcinoid Cancer Foundation is dedicated to bringing about this awareness as advocates for all who are currently living with carcinoid and related neuroendocrine tumors, their families, and those yet to be diagnosed. We are honored to be of service to this community and hope that our efforts continue to make a difference in your lives.