2012 National NET Patient Conference

August 31, 2012

Register now for the 2012 National NET Patient Conference to be held September 20 – 22, 2012 in New Orleans, Louisiana.   This is an excellent opportunity to get information about NETs from nationally and internationally recognized carcinoid/NETs…


“Imaging of Neuroendocrine Tumors and Obstacles to Diagnosis,” a Free Webinar on August 22 for Physicians and Healthcare Professionals

July 31, 2012

SPECIAL NOTICE: This webinar has just been opened to the patient community and the public, with limited spaces available.  Register today at the link below for the August 22 webinar.

Are you or do you know a physician or healthcare professional who would…


Run for Hope to Benefit Carcinoid Research and Education

July 14, 2012

Get your running shoes ready for the 8th Annual Run for Hope, organized by the Lambert family!  The goal of the August 4th run is to raise awareness of carcinoid cancer, provide education, and give hope . . . while raising funds for carcinoid research/education.  …


Monica Grundmann Dedicates Championship Ride to Carcinoid Cancer Awareness

June 30, 2012

Congratulations to carcinoid cancer survivor Monica Grundmann on winning the OCTRA 25 mi/40 km Competitive Trail Ride in Stormont, Ontario, Canada with her MORAB stallion, Excalibur Legend, on June 10th (check out those zebra striped gloves!!). …


Mud Cats Little League Team Raises Awareness for Carcinoid Cancer and Funds for the Carcinoid Cancer Foundation

May 14, 2012

To the amazing Mud Cats Little League Team, their coaches, families and friends we say a huge THANK YOU!!! Raising awareness about carcinoid cancer and funds for the Carcinoid Cancer Foundation was the goal of the June 2, 2012  Loudoun County, Virginia…


Iowa Carcinoid Cancer Connection

March 1, 2012

Welcome to the newly formed Iowa Carcinoid Cancer Connection support group!  Group leader Jennifer Holm invites all carcinoid cancer patients, their family, friends and caregivers to join the group.  Check out their website by clicking here


Rare Disease Day, February 29, 2012

February 20, 2012

February 29, 2012 marks the fifth international Rare Disease Day. On this day hundreds of patient organizations from more than 50 countries worldwide are organizing awareness-raising activities converging around the slogan “Rare But Strong…


Colorado Carcinoid Cancer Support Group

February 15, 2012

The Colorado Carcinoid Cancer Support Group has a terrific new website. Check it out: http://www.cccsg.net/. The Survivor Stories are especially inspiring. Thank you to all who have shared their journeys. …


Spotlight on The Unicorn Foundation

February 15, 2012

Seeking to raise awareness of NET cancers and funds for research, The Unicorn Foundation is the only nonprofit medical charity dedicated to the needs of Australian NET survivors.  Meet Dr. John Leyden, Chairman of the Foundation;  Kristen Leknius


World Cancer Day — February 4

February 1, 2012

World Cancer Day is the occasion to unite the world in the fight against cancer by raising awareness, educating the public, and lobbying for change. Together we can reduce the global cancer burden. Sign and share the World Cancer Declaration by clicking