News

Surviving Carcinoid Cancer for More Than 3 Decades

Marilyn Thurston of Colorado may be the longest-surviving carcinoid patient in the United States and possibly the world, having been diagnosed over 30 years ago.  Her physician, Dr. Nicholas DiBella, created a special pin recognizing her tenacity.…

Denied: Michael Farris’ Journey with Insurance for Neuroendocrine Cancer Treatment

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught…

CNETS Singapore Presents New Webinar Series Featuring Neuroendocrine Cancer Experts

The Carcinoid & Neuroendocrine Tumor Society (CNETS) of Singapore is embarking on a series of webinars on various topics related to the diagnosis and treatment of neuroendocrine cancers. With the support of a grant from Ipsen Biopharmaceuticals…

Celebrating Carcinoid/NET Physicians on National Doctors’ Day

March 30 is NATIONAL DOCTORS’ DAY. In recognition of carcinoid/neuroendocrine tumor (NET) doctors – you are our heroes and superheroes!! Pictured are some of the NET specialists throughout the United States.

Pictured by columns, left to right, top …

First Northeastern Facility Offers Gallium-68 DOTATOC PET/CT Imaging for Carcinoid and Neuroendocrine Cancer Patients

When Brian Hakimian had the 68Gallium DOTATOC PET/CT scan at the Icahn School of Medicine, Mount Sinai in New York City on January 14, 2015, he became the first carcinoid patient to undergo this novel imaging test at a northeastern facility. Now in clinical…

Intelligent Patients — Just What the Doctor Didn’t Order by Ronny Allan

The Carcinoid Cancer Foundation is pleased to announce that we are going to feature guest contributors to our blog during 2015. Intelligent Patients – Just What the Doctor Didn’t Order by Ronny Allan (pictured), a carcinoid cancer patient from the UK,…

New Mobile Platform to Help Carcinoid Cancer and NET Patients Take Control of Their Rare Diseases

The Carcinoid Cancer Foundation and the patient intelligence health solution provider Self Care Catalysts have announced a new partnership to provide carcinoid and neuroendocrine tumor (NET) patients with a new mobile patient support tool. The Carcinoid…

Songs for Life, Supporting Cancer Research – Please Vote for “Hush” by Giovanna Imbesi

While recovering from surgery for carcinoid cancer in 2006, Giovanna Imbesi used her amazing talents to compose “Hush,” featuring Toni Peete.  The song, says Giovanna, was created to “inspire peacefulness and quiet in the midst of frightening medical…

Josh Mailman’s Patient Perspective on Integrative Oncology Published

“A Patient’s Perspective on Integrative Oncology:  Getting Past the ‘War,’ Living with and Beyond Cancer” by Josh Mailman has been published in the November 2014 issue of the Journal of the National Cancer Institute Monographs focused on Integrative…

Luncheon with Carcinoid and Neuroendocrine Tumor Expert Physicians in New York City

The Big Apple Noids support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Lunch with the Experts on Sunday, December 14, 2014 at 12:30 pm in a private dining room at Dorrian’s restaurant…