First Northeastern Facility Offers Gallium-68 DOTATOC PET/CT Imaging for Carcinoid and Neuroendocrine Cancer Patients

February 9, 2015

When Brian Hakimian had the 68Gallium DOTATOC PET/CT scan at the Icahn School of Medicine, Mount Sinai in New York City on January 14, 2015, he became the first carcinoid patient to undergo this novel imaging test at a northeastern facility. Now in clinical…

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Intelligent Patients — Just What the Doctor Didn’t Order by Ronny Allan

January 28, 2015

The Carcinoid Cancer Foundation is pleased to announce that we are going to feature guest contributors to our blog during 2015. Intelligent Patients – Just What the Doctor Didn’t Order by Ronny Allan (pictured), a carcinoid cancer patient from the UK,…

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New Mobile Platform to Help Carcinoid Cancer and NET Patients Take Control of Their Rare Diseases

December 9, 2014

The Carcinoid Cancer Foundation and the patient intelligence health solution provider Self Care Catalysts have announced a new partnership to provide carcinoid and neuroendocrine tumor (NET) patients with a new mobile patient support tool. The Carcinoid

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Songs for Life, Supporting Cancer Research – Please Vote for “Hush” by Giovanna Imbesi

November 21, 2014

While recovering from surgery for carcinoid cancer in 2006, Giovanna Imbesi used her amazing talents to compose “Hush,” featuring Toni Peete.  The song, says Giovanna, was created to “inspire peacefulness and quiet in the midst of frightening medical…

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Josh Mailman’s Patient Perspective on Integrative Oncology Published

November 19, 2014

“A Patient’s Perspective on Integrative Oncology:  Getting Past the ‘War,’ Living with and Beyond Cancer” by Josh Mailman has been published in the November 2014 issue of the Journal of the National Cancer Institute Monographs focused on Integrative…

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Luncheon with Carcinoid and Neuroendocrine Tumor Expert Physicians in New York City

November 13, 2014

The Big Apple Noids support group invites you to join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Lunch with the Experts on Sunday, December 14, 2014 at 12:30 pm in a private dining room at Dorrian’s restaurant…

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US Results from First Global NET Patient Survey

November 9, 2014

The Carcinoid Cancer Foundation and the Caring for Carcinoid Foundation, member organizations of theInternational Neuroendocrine Cancer Alliance (INCA), together with Novartis Pharmaceuticals Corporationhave announced the US results from …

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NET Cancer Day Selfies Awareness Campaign: Time to Diagnosis

October 10, 2014

Worldwide NET Cancer Awareness Day, November 10, 2014, is less than a month away!  The theme for this year’s awareness campaign is “Time to Diagnosis,” focusing on one of the most common issues with carcinoid and other types of neuroendocrine cancers. …

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1st Annual Tommyland Invitational Charity Golf Tournament to Benefit Carcinoid Cancer Foundation

August 25, 2014

The 1st Annual Tommyland Tourney, a charity golf tournament to benefit the Carcinoid Cancer Foundation, will be held at Schneiter’s Riverside Golf Course in Riverdale, Utah on Sunday, September 14th. The tournament is being held in memory of …

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Clinical Trial for GI Carcinoid Patients Recruiting through September

July 23, 2014

Gastrointestinal carcinoid patients who have tumors that either are not suitable for standard treatment or are not responding to standard treatment have the opportunity to enroll in a Phase I/II clinical trial conducted byTekmira Pharmaceuticals

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