Tannis Brown

Neuroendocrine Cancer Survivor Featured on Discovery Fit & Health TV Show

July 8, 2012

THIS JUST IN:  Tannis Brown, a pheochromocytoma patient and Vice President of the Pheo Para Troopers, will be featured on the Discovery Fit & Health Network on Monday, July 9 in a program titled Diagnosis: Dead or Alive.* The 60 minute show will focus…

READ MORE
Monica Grundmann & Stallion

Monica Grundmann Dedicates Championship Ride to Carcinoid Cancer Awareness

July 2, 2012

Congratulations to carcinoid cancer survivor Monica Grundmann on winning the OCTRA 25 mi/40 km Competitive Trail Ride in Stormont, Ontario, Canada with her MORAB stallion, Excalibur Legend, on  June 10th (check out those zebra striped gloves!!). …

READ MORE
OLYMPUS DIGITAL CAMERA

Mud Cats Little League Team Raises Awareness for Carcinoid Cancer and Funds for the Carcinoid Cancer Foundation

June 26, 2012

To the amazing Mud Cats Little League Team, their coaches, families and friends we say a huge THANK YOU!!! Raising awareness about carcinoid cancer and funds for the Carcinoid Cancer Foundation was the goal of the June 2, 2012  Loudoun County, Virginia…

READ MORE
My NET Manager Mobile App for Carcinoid Cancer and Neuroendocrine Tumor Community

First Mobile App for Carcinoid and Neuroendocrine Cancer Community Goes Live

June 15, 2012

The first mobile app for carcinoid cancer and neuroendocrine tumor (NET) patients is now available for downloading on the iPhone, iPad, and Android!  My NET Manager, a free app provided by Novartis Oncology, offers patients a unique opportunity to track…

READ MORE
New Orleans Cuisine

National Carcinoid and NET Patient Conference: Have You Registered?

May 31, 2012

Have you registered for the national carcinoid and NET patient conference in New Orleans, September 20 – 22?  The hotel is over 90% booked and registration is nearing capacity!  This is a wonderful opportunity to learn more about carcinoid and …

READ MORE
Mudcats logo

Mud Cats Little League Baseball Game in Virginia Raises Awareness and Funds for Carcinoid Cancer

May 24, 2012

Go Mud Cats!!!  Cheer on the Mud Cats Little League baseball team on Saturday, June 2, 2012 at 4 pm, Edgar Tillet Memorial Park, in Loudoun County, Virginia, when the team plays its annual “Friends and Family” game.  This year’s game will focus on carcinoid…

READ MORE
zebras_in_love

More Things Zebra for the Carcinoid and Neuroendocrine Tumor (NET) Community: From the Everyday to the Extraordinary

May 14, 2012

Why the zebra for carcinoid and neuroendocrine cancer awareness?  In medical school, students are told, “When you hear hoof beats, think horses, not zebras.”   Physicians are taught to focus on the most likely possibilities when making a diagnosis,…

READ MORE
Denise Passehl

Social Media Connects Carcinoid and Neuroendocrine Cancer Survivors

April 20, 2012

Denise Passehl, a carcinoid cancer survivor, will share her experience with social media when she participates in the 140 Characters Conference on April 23 in Des Moines, Iowa. The focus of the conference, designed by Jeff Pulver, is how “real time technology…

READ MORE
run-for-hope-header-white

Run for Hope to Benefit Carcinoid Cancer Research and Education

April 12, 2012

Get your running shoes ready for the 8th ANNUAL RUN FOR HOPE on Saturday, August 4, 2012.  The goal of the run is to raise awareness of carcinoid cancer, provide education, and give hope . . . while raising funds for carcinoid research and education and the …

READ MORE
Lexicon Headquarters

Lexicon Pharmaceuticals Granted Orphan Drug Designation by FDA for Carcinoid Syndrome Treatment

April 2, 2012

Lexicon Pharmaceuticals, Inc. has been granted Orphan Drug Designation for telotristat etiprate (LX1032) by the U.S. Food and Drug Administration (FDA).  LX1032 is used to treat carcinoid syndrome, a chronic condition caused by neuroendocrine tumors,…

READ MORE