FDA Approves Amendment for PRRT Clinical Trial in Texas
BREAKING NEWS: The Food and Drug Administration (FDA) has just approved the RadioIsotope Therapy of America (RITA) Foundation’s amendment to the Investigational New Drug (IND) protocol for intra-hepatic artery administration of Lu-177 Octreotate…
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Worldwide NET Cancer Awareness Day Alliance Launches Zebra Cartoon Sequel
Global recognition of the need for NET (neuroendocrine tumor) cancer awareness will be marked by the third annual worldwide NET Cancer Day on November 10, 2012. In anticipation of the day, the Worldwide NET Cancer Awareness Day Alliance has launched…
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Neuroendocrine Cancer Survivor Featured on Discovery Fit & Health TV Show
THIS JUST IN: Tannis Brown, a pheochromocytoma patient and Vice President of the Pheo Para Troopers, will be featured on the Discovery Fit & Health Network on Monday, July 9 in a program titled Diagnosis: Dead or Alive.* The 60 minute show will focus…
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Monica Grundmann Dedicates Championship Ride to Carcinoid Cancer Awareness
Congratulations to carcinoid cancer survivor Monica Grundmann on winning the OCTRA 25 mi/40 km Competitive Trail Ride in Stormont, Ontario, Canada with her MORAB stallion, Excalibur Legend, on June 10th (check out those zebra striped gloves!!). …
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Mud Cats Little League Team Raises Awareness for Carcinoid Cancer and Funds for the Carcinoid Cancer Foundation
To the amazing Mud Cats Little League Team, their coaches, families and friends we say a huge THANK YOU!!! Raising awareness about carcinoid cancer and funds for the Carcinoid Cancer Foundation was the goal of the June 2, 2012 Loudoun County, Virginia…
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First Mobile App for Carcinoid and Neuroendocrine Cancer Community Goes Live
The first mobile app for carcinoid cancer and neuroendocrine tumor (NET) patients is now available for downloading on the iPhone, iPad, and Android! My NET Manager, a free app provided by Novartis Oncology, offers patients a unique opportunity to track…
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National Carcinoid and NET Patient Conference: Have You Registered?
Have you registered for the national carcinoid and NET patient conference in New Orleans, September 20 – 22? The hotel is over 90% booked and registration is nearing capacity! This is a wonderful opportunity to learn more about carcinoid and …
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Mud Cats Little League Baseball Game in Virginia Raises Awareness and Funds for Carcinoid Cancer
Go Mud Cats!!! Cheer on the Mud Cats Little League baseball team on Saturday, June 2, 2012 at 4 pm, Edgar Tillet Memorial Park, in Loudoun County, Virginia, when the team plays its annual “Friends and Family” game. This year’s game will focus on carcinoid…
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More Things Zebra for the Carcinoid and Neuroendocrine Tumor (NET) Community: From the Everyday to the Extraordinary
Why the zebra for carcinoid and neuroendocrine cancer awareness? In medical school, students are told, “When you hear hoof beats, think horses, not zebras.” Physicians are taught to focus on the most likely possibilities when making a diagnosis,…
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Social Media Connects Carcinoid and Neuroendocrine Cancer Survivors
Denise Passehl, a carcinoid cancer survivor, will share her experience with social media when she participates in the 140 Characters Conference on April 23 in Des Moines, Iowa. The focus of the conference, designed by Jeff Pulver, is how “real time technology…
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