Many other websites contain additional valuable information about carcinoid and related neuroendocrine tumors --medical information, support group schedules, patient conference schedules, treatment tips, newsletters, reports from patient conferences, lecture transcripts, videos, and much more. These websites range from personal and support group sites both national and international.
United States
Welcome
to My Story
This website has been created to share with you my
story. It’s a story about being diagnosed
with cancer. But not just any cancer - a rare form
of cancer, one that is normally diagnosed in people
twice my age. Many people have never heard of it,
most doctors are confused by it, and survivors are
just looking for a way to beat it. This is my story
about my ongoing battle with Carcinoid Cancer Kari Houston Jones
"My Carcinoid Story" Susan
Anderson's Home Page: Contains a wealth of information. You
will also find many additional personal web-pages
on this site "Lead
a full and active life while LIVING with Cancer - info
and links for medical/drug databases, support groups,
humor, books, music, prayer lists, travel, political
issues, AZ info, cowboy poetry, and much more!
Created by a"Survivor of Carcinoid and Breast Cancer".
Susan Anderson, a carcinoid patient and awareness advocate has maintained a website to provide information and support for the carcinoid community since 1996.
Carcinoid
Cancer - Al Simms's website Written in everyday language with mainstream medical input. A Carcinoid Cancer Resource for the Layman. A superb personal website. Visual instruction on how to inject Sandostatin.
The author states:
"My purpose in creating these Carcinoid Cancer pages ...... is to provide a
resource for the non-medical person who has the disease, suspects that he may
have the disease or knows someone who has the disease. It is my hope that someone
who does not know he has the disease may recognize early symptoms and insist
that his or her Doctor run some simple tests to diagnose the disease. IF IT
IS CAUGHT EARLY ENOUGH IT CAN BE COMPLETELY CURED.
Larry Chinnery's Home Page June 2006. We mourn the departure of Larry from this earth.
Larry was long time Noid survivor has published an
amazing website. One of the goals with this website
is to provide direction to those searching for useful
information about carcinoid cancer and carcinoid syndrome.
Hopefully by using this site as you would a compass,
you will be able discover a great deal about this very
weird and somewhat rare form of cancer.
Carrie
Snelgrove's Carcinoid Story
Good Evening Ya'll. Just wanted to let everyone know that I
have updated my caring bridge website. Please take a minute
and stop by
"An Australian Carcinoid Site"
There are very few "patient-friendly" sites in Australia, that provide informational service for people who are affected by the Carcinoid illness. This site was created to fulfill this void, is intended to provide basic information regarding Carcinoid Cancer and is maintained by Brett Watson & Michelle Vincent
Eric's
Story of his journey through the carcinoid maze
Eric has been diagnosed and treated for a rare form of cancer called "Carcinoid Cancer". His personal website chronicles the saga of Eric's trials and tribulations on his journey from the day of diagnosis. This website is updated very frequently..
If you would like to have a look at what Eric is up to his blog is http://moonhaven.com.au/ericsstory/ . He is currently finishing his 4rth and final Lu-177 treatment as part of the study conducted by Prof Harvey Turner at Fremantle Hospital WA with reasonable good results.
Eric & Leonie Gully
