Additional U.S. and International medical Information
WEB Sites
This is a list of websites that you may find useful in your search for additional information about research, financial assistance,and other related medical information.
Universities Worldwide
Links to 7304 Universities in 182 countries ( Updated November 2nd, 2005)
Welcome to the searchable database of Universities around the world! Starting as a mirror site of Christina DeMello's "College and University Home Pages" list that hasn't been updated for a long time, the listing of Institutions is now based on the "World List of Universities 1997" published by the International Association of Universities (IAU) and links discovered or posted here. Database is maintained by Klaus Förster, reproduction and distribution are permissible for non-profit purposes only, but no changes are to be made to these documents without the author's written consent.
European Neuroendocrine Tumor Society ( ENETS)
The European Neuroendocrine Tumor Society is an international professional association composed of physicians and researchers, whose main area of study is related to neuroendocrine tumors. Society members, currently numbering around 200, bring a variety of expertise to ENETS, such as oncology, pathology, endocrinology, surgery and gastroenterology. ENETS is supported via membership dues, as well as through educational grants from the pharmaceutical community. It is administratively-based in Berlin, Germany.
European Neuroendocrine Tumor Network (ENETS)
United States
American Association for Cancer Research (AACR) For Scientists Survivor and Patient Advocacy Program For cancer survivors and advocates
AACR encourages survivors, advocates and scientists to share their knowledge and experiences and to learn from one another. We hope that these partnerships will promote a better understanding of cancer and improve research aimed at preventing and curing cancer. Patients, survivors and advocates will find clear and accurate information about research findings, support and advocacy groups, clinical trials and biomedical terminology. Scientists and doctors will find inspiration, insights and guidance that the AACR hopes will improve their roles in advancing research and care. Calendar of Conferences and Events
AllRefer Health
A medical and health information resource containing outstanding database of health articles and reference materials. Consumers and health professionals alike can depend on it for information that is authoritative and up-to-date.
The American Cancer Society
Resources for health information seekers.
Excellent and most informative sites regarding diagnosis,treatment,staging, what to ask your doctor, references etc. for lung and gastrointestinal carcinoid.
ASCO
The American Society of Clinical Oncology welcomes you to ASCO Online, an interactive resource for oncology professionals and cancer patients. ASCO Online provides a range of professionally edited information, as well as interactive services for ASCO members
People Living With Cancer (PLWC)
People Living With Cancer, the patient information website of the American Society of Clinical Oncology (ASCO), provides oncologist-approved information on more than 50 types of cancer and their treatments, clinical trials, coping, and side effects. Additional resources include live chats, message boards, a drug database, medical dictionary, and links to patient support organizations. The site is designed to help people with cancer make informed health-care decisions. NEW (5/2006) We are pleased to announce the recent launch of the redesigned People Living With Cancer (www.plwc.org) website. We invite you to visit PLWC to see the enhancements, including a new look, restructuring of the site content to improve navigation, and the addition of three new main content sections. The new homepage now provides a more user-friendly design, a drop down menu leading to the more than 90 cancer types, a listing of frequently asked questions, and quick links to resources within the site.
R.A.Bloch Cancer Foundation
One H&R Block Way, Kansas City, MO 64105
TEL:
816-854-5050 ~ 1-800-433-0464
FAX 816-854-8024 ~ "Having cancer is bad enough! Not knowing what to do about it is even worse."
The R.A. Bloch Cancer Foundation’s goal is to help people diagnosed with cancer achieve the best and quickest possibility of recovery. We advocate getting a second opinion upon diagnosis and becoming well-educated about cancer and its treatments. Our mantra for people diagnosed with cancer is to seek prompt, proper and thorough treatment. Founded in 1980, our services are free, andwe never solicit financial donations from the people whom we serve.
For more information about this very special Foundation CLICK HERE
Cancer Care, Inc.
"When you don't know where to turn", Cancer Care can help.
If you or someone you know has just been diagnosed with carcinoid cancer—or has been living with carcinoid cancer for some time—you may have questions or need support. This web site define the five areas of service we offer for carcinoid cancer patients and their families.
CanSurive
“CanSurvive” is a general cancer support group (supporting people with all kinds of cancers) and has been in existence since before 1990 in the Washington DC area using the name “One Day At A Time”.
Caring For Carcinoid Foundation A non-profit organization dedicated to funding genetic research and clinical trials specifically targeted for carcinoid cancer. Their mission is to find a cure for carcinoid.
CHID online
The Combined Health Information Database. CHID is a bibliographic database produced by health-related agencies of the Federal Government. This database provides titles, abstracts, and availability information for health information and health education resources.
Complementary and Alternative Therapies
by the American Cancer Society
Making Treatment Decisions:
The terms "alternative" or "complementary" are used to refer to non-traditional methods of diagnosing, preventing, or treating cancer. Many cancer patients find that these therapies relieve symptoms or side effects, ease pain, and enhance their lives during treatment. How can you know if these approaches are safe and if they can help you?
E-Health Article
Health Articles - Men's and Women's Health
In this site, you will find information about most disease and conditions and provide links to recent articles in each conditions. All medical conditions are categorized in alphabetical order as well as system wise in the body like blood , bone etc. You can also use the search function to find the information you want.
By 2005 the EAPC counted individual members in 40 countries, with collective members from 32 National Associations in 21 European countries, representing a movement of some 50.000 health care workers and volunteers working or interested in palliative care.
EAPC OPERATES WITH THE FOLLOWING AIMS:
Promote the implementation of existing knowledge; train those who at any level are involved with the care of patients and families affected by incurable and advanced disease; and promote study and research.
Bring together those who study and practise the disciplines involved in the care of patients and families affected by advanced disease (doctors, nurses, social workers, psychologists and volunteers).
Promote and sponsor publications or periodicals concerning palliative care.
Unify national palliative care organizations and establish an international network for the exchange of information and expertise.
Address the ethical problems associated with the care of terminally ill patients
Healthcyclopedia-- The Complete Guide to Health Care Resources on the Internet
Very comprehensive information regarding carcinoid and related neuroendocrine tumors with excellent links to relevant subjects.
For direct access to carcinoid subjects go to http://www.healthcyclopedia.com/cancer/carcinoid.html We also urge you to visit their main page. This site is a beautifully designed, easy-to-navigate website with a multitude of health-related subjects.
Healthfinders®
This site, created by the Department of Health and Human services, leads to selected online publications, databases, lists of support groups and mention of agencies and organizations providing information to the public.
NEW HealthWell Foundation Launches New Program To Help Patients With Carcinoid Tumors Gaithersburg, MD (February 1, 2007) – The HealthWell Foundation® is pleased to announce a new program to assist patients diagnosed with carcinoid tumors and symptoms related to carcinoid tumors. The HealthWell Foundation is an independent, non-profit organization working to reduce barriers to medical care for patients with chronic or life-threatening diseases. The new program provides financial assistance to help underinsured patients afford their copayments and other out-of-pocket costs for treatments for carcinoid tumors and related symptoms.
"As patients continue to face rising out-of-pocket medical costs, the HealthWell Foundation is working to help reduce financial barriers to care,” said Stephen M. Weiner, President of the HealthWell Foundation. "We have assisted more than 23,000 patients in over 22 disease areas and are excited to expand our program to help patients with carcinoid tumors afford their medical treatments as well."
Additional information about the new carcinoid tumors program and the HealthWell Foundation is available online at www.healthwellfoundation.org.
Merkel Cell Carcinoma
A very thorough informative website for both patients and medical professionals regarding this very malignant for of nonfunctoning neuroendocrine cancer of the skin
MediFocus Guidebooks
Home to medical guides and treatment options on multiple medical conditions. These guidebooks provide a wealth of up to date medical references, are extremely well organized and useful for both patients and physicians. MediFocus Guidebook to Carcinoid Tumors.
MedlinePlus
Welcome to MedlinePlus, a goldmine of good health information from the world's largest medical library, the National Library of Medicine. Health professionals and consumers alike can depend on it for information that is authoritative and up to date.
Medscape
The Online Resource for Better Patient Care®. Medscape is the leading medical information Web site and is designed to give healthcare professionals and consumers the healthcare information and digital data they need, regardless of where or when they need it.
New York Online Access to Health (NOAH)
This site seeks to provide high quality full-text health information for consumers that is accurate, timely, relevant and unbiased. NOAH currently supports English and Spanish. An outstanding bilingual consumer health information site.
National Organization for Rare Disorders
The National Organization for Rare Disorders is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases. We invite you to explore this exciting web site and familiarize yourself with the full range of NORD's services. Read our acclaimed newsletter the Orphan Disease Update or search the Rare Disease Database, the Organizational Database, and Orphan Drug Designation Database for information on specific rare disorders.
OncoLink
OncoLink is the first multimedia oncology information resource placed on the Internet. OncoLink is accessible worldwide to anyone with Internet access, has been established with the following objectives: Dissemination of information relevant to the field of oncology, Education of health care personnel, education of patients, families, and other interested parties, and Rapid collection of information pertinent to the specialty.
Office of Rare Diseases (ORD)
The National Institute of Health's website of Office of Rare Diseases (ORD) provides information on more than 7000 rare diseases, including current research,clinical trials, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups
About ORD
The Office of Rare Diseases (ORD) was established in 1993 within the Office of the Director of the NIH, the Nation’s medical research agency. Public Law 107-280, the Rare Diseases Act of 2002, established the office in statute. The goals of ORD are to stimulate and coordinate research on rare diseases and to respond to the needs of patients who have any one of the almost 7,000 rare diseases known today.
Definition of rare diseases: (Orphan Drug Act as amended in 1984 by P.L. 98-551 to add a numeric prevalence threshold to the definition of rare diseases.)
“…the term, rare disease or condition means any disease or condition which (a) affects less than 200,000 persons in the U. S. or (b) affects more than 200,000 persons in the U.S. but for which there is no reasonable expectation that the cost of developing and making available in the U. S. a drug for such disease or condition will be recovered from sales in the U. S. of such drug.”
For additional information about ORD, contact:
Office of Rare Diseases
National Institutes of Health
6100 Executive Boulevard, 3B-01
Bethesda, Maryland 20892–7518
Telephone: (301) 402–4336
Fax: (301) 480–9655
Helping Patients.org Helping Patients brings together America’s pharmaceutical companies, doctors, patient advocacy organizations and civic groups to help low-income, uninsured patients get free or nearly free brand-name medicines. Its mission is to increase awareness of and enrollment in existing patient assistance programs for those who may be eligible. Through this site, Helping Patients offers a single point of access to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies.
Pancreatica.org For patients with neuroendocrine pancreatic cancer this site is MUST visit. It is a well designed and easy to navigate site which includes comprehensive information on all aspects of pancreatic cancer and has the largest database in the world of clinical trials against pancreatic cancer. The Frequently Answered Question section has information well worth reading for adenocarcinoma( adenocarcinoid) patients.
Quackwatch Don't let desperation lead you to try things just because someone advises you to do so. Read the information on this web site thoroughly. This site was created by Dr. Stephen Barrett, a noted "quackbuster" of what he considers to be useless treatments and irresponsible practitioners.
Steve Dunn's CancerGuide
CancerGuide is dedicated to helping you find the answers to your questions about cancer, and especially to helping you find the questions you need to ask. CancerGuide is created by Steve Dunn, a fellow survivor.
NOTE: Steve Dunn died on August 19, 2005 from complications of bacterial meningitis. He was a Stage IV (terminal) kidney cancer patient who had been completely cured 15 years earlier.
In 1989, after his doctors said his cancer could not be treated, Steve found a clinical trial through his own research. Later he decided to share what he had learned, primarily through this website and also as an ACOR mailing listowner, speaker, and FDA patient advocate for Kidney Cancer clinical trials. Steve's own story about his cancer (under "Inspirational Patient Stories") tells it better than any of us can. His dedication and determination has helped thousands of patients and caregivers, inspiring many of them to help others. Cancerguide will go on as a lasting tribute to him. It will always be Steve Dunn's Cancerguide.
Surviving Cancer
in Greater Washington DC
An online resource provided by the Greater Washington Coalition for Cancer Survivorship.
Whether you are newly diagnosed, a long-term survivor, caring for a loved one with cancer, or providing professional services for cancer survivors and patients, we are here to help you. We provide a directory of support groups and a calendar of cancer-related events in the Washington, DC area, and we serve as a clearinghouse for general information about surviving cancer.
These organizations may be helpful as you plan your medical travel needs.
Patient Travel.org
A service from the National Patient Travel Center, is a free service designed to find charitable, charitably assisted and specially discounted commercial flights to research and treatment sites for patients. It includes many volunteer pilot and flight organizations around the country. The toll free telephone number is: 800-296-1217.
Angel
Flight America and Airlife Line Combined Organizations to Represent Estimated 90% of All Charitable Non-Emergency Medical and Compassion Flights in the United States
Corporate Angels Corporate Angel Network is the only charitable organization in the USA whose sole mission is to ease the emotional stress, physical discomfort and financial burden of travel for cancer patients by arranging free flights to treatment centers, using the empty seats on corporate aircraft flying on routine business.
The Air Care Alliance Patient Transport by aircraft is provided for free by many volunteer pilot organizations. The Air Care Alliance provides the only web site which lists all known volunteer pilot organizations providing patient transportation and flying for the public benefit
lodging resources
These organizations help to provide housing for patients and families during their medical treatments.
(NAHHH) National Association of Hospital Hospitality Houses
NAHHH is a membership organization of hospital hospitality house type programs. This site provides a directory of lodgings for families of hospital patients and/or hospital outpatients. struggling with a medical crisis. The National Association of Hospital Hospitality Houses is a network of houses all around the United States. They provide lodging and support for people of all ages and all walks of life who are dealing with medical emergencies far from their homes. Hospitality Houses have been one of the world’s best kept secrets. Won’t you please help these “homes that help and heal” become known to the world?”
The toll free telephone number is: 800-542-9730.
Miracle House.org
Miracle House provides housing and support services to the families and friends of those living with AIDS or Cancer, as well as Cancer patients and their caregivers. For more information visit their web site or http://www.nahhh.org/template/template.php?id=1742
