Carcinoid/NETs Specialists


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Doctors Diagnosing and Treating Carcinoid/NETs
U.S. and International

If in doubt...
Get your second opinion
from a competent, caring
carcinoid/NET specialist

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In this section, you will meet some of your world's most recognized carcinoid/NET specialists.

You can also view photos and listen to lectures from the Patient Carcinoid/NET Conferences -- September 2006 in Portland Oregon and Norfolk Virginia  September 2007.

And, you can view slide show photos of our most admired specialists from the Portland Oregon Patient Conference 2006.

Carcinoid/NET Proactive Specialists

How do we define a carcinoid/NET specialist?

  • 10-20 years or more experience in treating carcinoid/NET patients.
  • Authored or coauthored more than 10 peer review articles on carcinoid/NETs
  • Treating 100+ carcinoid/NET patients over time.

We have indicated specialists with an asterisk *.

Carcinoid/NET Friendly Physicians

It is very difficult for many carcinoid/NETs patients to find a local physician to meet their medical needs on an ongoing basis. In addition to specialists there are doctors from a variety of medical fields that have been identified as:

  • Having an interest in diagnosing and treating carcinoid and
    Neuroendocrine tumor patients.
  • Willing to consult with national and international carcinoid/NETs specialists.
  • Recommended by patients who use them locally and trust them
    (patients comments are often includsed for these doctors).

Our disclaimer...

Please Note: Each of the doctors listed below has given his/her permission to be included on the Carcinoid Cancer Foundation™ website.

 Access International Specialists by clicking on a country name below:

Argentina, Asia, Australia, Brazil, Canada, Europe, France, Germany,
Italy, Japan, Netherlands, Sweden, United Kingdom


United States


AL | AK | AZ | AR | CA | CO | CT | DE | DC | FL | GA | HI | IA | ID | IL | IN | IA | KS | KY | LA | ME | MD| MA | MI | MN | MS | MO | MT | NE | NV | NH | NJ | NM | NY | NC | ND | OH | OK |OR | PA | RI | SC | SD | TN | TX | UT | VT | VA| WA | WDC | WV | WI

Arizona

California

Colorado

  • Allen L. Cohn, M.D.
    (Gastrointestinal Cancer and Neurological Oncology)
    Rocky Mountain Cancer Centers
    1800 Williams Street
    Denver, CO 80218
    Tel: 303-388-4876
    Fax: 303-377-8375
    Clinical Trial: Rocky Mountain Cancer Center-Midtown 
    Denver, CO 80218
    Recruiting contact: Allen.Cohn@USOncology.com 
    For Resume and Bibliography (PDF file)
    Comments    : "He is outstanding and works with the guys in LA all the time." KH, Colorado
  • Nicholas J. Di Bella, M.D., FACP, (Medical Oncology)
    Chairman, USON Hematology Research Committee
    President, Rocky Mountain Cancer Centers
    Rocky Mountain Cancer Center
    1700 S Potomac
    Aurora, CO  80012
    Tel: 303-418-7600  
    Fax:303-750-3137
    Curriculum Vitae
    Comments: "In September 2006 Dr. Nick Di Bella gave me my 25 year survival pin for having carcinoid with liver metastases for 25 years. Perhaps I can give hope to other carcinoid patients by telling my story" Marilyn Thurston, Pueblo, CO
  • Diana C. Medgyesy, M.D.
    Front Range Cancer Specialists
    1501 S. Lemay Avenue
    Fort Collins, CO 80524
    Tel: 970-212-7600
    Fax: 970-212-7637
    E-mail: dmedgyesy@frontrangecancer.com
    Comments: "After reading some of the horror stories about clueless medical staff (on the carcinoid ACOR list) I've gained an even greater appreciation for Dr. Medgyesy's professional skills.She isn't a carcinoid specialist per se, but knew of the disease." Woody Hesselbarth

  • Charles Nutting, D.O.*(Interventional Radiology)
    Porter Adventist Hospital
    2525 South Downing Road
    Denver, CO 80210
    Contact: Jeanne Swanson, RN
    Tel: 720-493-3406
    Website: http://www.porterhosp.org/

Connecticut

  • Irvin M. Modlin, M.D., Ph.D., F.R.C.S., F.A.C.S.*
    (Gastrointestinal/General Surgery)
    Department of Surgery
    Yale School of Medicine
    P.O. Box 208062
    New Haven, CT 06520-8062
    Tel: 203-785-5429
    Fax: 203-737-4067
    Yale-New Haven Medical Center
  • M. Wasif Saif, M.D. (Medical Oncology)
    333 Cedar Street
    FMP 116
    PO Box 208032
    New Haven, CT 06520-8032
    Tel: 203-785-4191
    Fax: 203-785-3788
    Yale Cancer Center
  • Wajih Zaheer, M.D. (Medical Oncology)
    111 Goose Lane, Suite 1300
    Guilford, CT 06437
    Tel: 203-453-9192
    Comments: Works with Dr. Richard Warner, NYC

Florida

  • Seza A. Gulec, MD, FACS *(Surgical Oncology/ Radiology/Nuclear Medicine)
    Professor of Surgery, Radiology/Nuclear Medicine
    Chief of Surgical Oncology
    Florida International University College of Medicine
    11200 SW 8th Street, HLS II 693
    Miami, Florida 33199
    Tel: 786-693-0821
    Comments: Dr. Gulec is board certified in both surgery and nuclear medicine. Dr. Gulec's clinical area of interest is surgery of endocrine/neuroendocrine tumors. Collaborates with Dr. Richard R.P. Warner NYC
  • Douglas Faig, M.D. (Medical Oncology)
    5700 N. Federal Highway
    Suite 5
    Fort Lauderdale, FL 33308
    Tel: 954-776-1800
    Comments: Dr. Faig is caring for patients originally seen by Dr. Richard Warner for consults and continues to communicate with Dr. Warner regarding specific problems.
  • Larry Kvols, M.D. *(Medical Oncology)
    Professor of Interdisciplinary Oncology and Medicine
    Head, Section of Neuroendocrine Tumor Research
    H. Lee Moffitt Cancer Center
    12902 Magnolia Drive
    WCB, Suite 12503
    Tampa, FL 33612-9416
    Tel: 813-745-7257
    Fax: 813-745-7229
    H. Lee Moffit Cancer and Research Center
    (Will only accept histologically diagnosed carcinoids)
  • William Maples, M.D.*(Medical Oncology)
    Mayo Clinic
    4500 San Pablo Road
    Jacksonville, FL 32224
    Tel: 904-953-2000 (General number)
    Tel::904-953-7290 (Office)
    Mayo Clinic, Jacksonville, FL
  • Jonathan R. Strosberg, M.D.* (Medical Oncology)
    H. Lee Moffitt Cancer Center & Research Institute
    12902 Magnolia Drive
    Tampa, FL 33612
    Tel: 813-745-7257
    Comments: Part of Dr. Larry Kvols' neuroendocrine tumor team.
    Research Interests:Phase 2 trials in neuroendocrine cancers, specifically carcinoid and pancreatic endocrine tumors focusing on biologic targeted therapy
    Clinical Interests:.Neuroendorine malignancies, specifically carcinoid tumors and pancreatic endocrine (islet cell) tumors.

Georgia

  • Steven T. Brower, M.D.*(Surgical Oncology)
    Dept.of Surgery
    Memorial Health Univ. Med. Ctr.
    4700 Waters Avenue, ACI Building
    Savannah, GA 31403
    Tel:  912-350-7412
           912-350-2299 ( for patient appt.)
    Fax: 912-350-2298
    Contact person: Lelslie Myers
    Practice Name: Provident Health Surgical Associates
    Bibliography

  • Daniel W. Dubovsky, M.D. (Oncology, hematology)
    Atlanta Cancer Care (you will find Dr. Dubovsky's bio on this page)
    5670 Peachtree Dunwoody Road
    Suite 1100
    Atlanta, GA 30342
    Tel 404-851-2330
    Fax:404-851-2014
    Comments: " Dr. Dubovsky is currently the President of Atlanta Cancer Care, and holds positions at St. Joseph's Hospital as Chairman of the Institutional Review Board and Director of the Cancer Data Center. Dr. Dubovsky is a U.S. citizen and has permanently settled in Atlanta with his family. I have been under Dr. Dubovsky's care since March 2004. He is very knowledgeable about carcinoid tumors and seems willing to work with specialists, namely Dr. Larry Kvols in Tampa, FL."  Patricia Howard

  • R. Martin York, M.D. (Medical Oncology, Hematology)
    Peachtree Hematology-Oncology Consultants
    Newnan Hospital
    128 Millard Farmer Ind. Blvd
    Newnan, GA 30263
    Tel: 770-251-2590

Illinois

  • Al B. Benson III, M.D. *(Medical Oncology)
    675 N. St. Clair, Galter 21-100
    Chicago, IL 60611
    Tel: 312-695-0990
    Nortwestern Memorial Hospital Chicago, IL
    (Will only accept histologically diagnosed carcinoids)
    This doctor prefers to see new patients after discussing their care with their current physician. Please have your physician contact the Northwestern Memorial Physician Access Line (PAL) at 800-638-3737.
  • Riad Salem, M.D., MBA *(Interventional Radiologist)
    Northwestern University Medical School Department of Radiology
    676 North St. Clair Street Suite 800
    Chicago, IL 60611
    Tel: 312-695-5753
    Fax: 312-695-5645
    Email: r-salem@northwestern.edu
    Comments: "RE: SirSpheres /Theraspheres procedures. After much research, Dr. Salem appears to be one of the most experienced interventional radiologists in the nation with this procedure and from his writings has had excellent results." DF

Indiana

  • Keith D. Lillemoe, M.D. (Oncology Surgery)
    Chairman; Dept of Surgery
    Indiana University Simon Cancer Center
    EH 203
    545 Barnhill drive
    Indianapolis, IN 46202
    Tel: 317-247-5707
    Gastrointestinal Cancer Program
  • Patrick J. Loehrer, M.D. (Medical Oncology)
    Professor of Medicine
    Division Director Hematology and Oncology
    Indiana University Cancer Center
    535 Barnhill Drive, Room 473
    Indianapolis, IN 46202
    Tel: 317-278-7418
    Fax: 317-278-0079
    Comments: Works with Dr. Richard Warner in NYC.

Iowa

Louisiana

  • Oschner Neuro Endocrine Program*
    (View Flyer)
    200 West Esplanade, Suite 200
    Kenner, LA 70065
    Tel: 504-464-8500
    Fax 504-464-8525
    1-866-91-ZEBRA (866-919-3272)
    Website: www.ochsner.org/NETS

    Medical Staff

  • Lowell Anthony, M.D., FACP*
    (Medical Oncology, Neuroendocrine, Carcinoid Tumor)
    Professor of Internal Medicine, LSUHSC
  • J. Philip Boudreaux, M.D., FACS*
    (Neuroendocrine-Carcinoid Tumor Surgery, Transplant Surgery,
    General Surgery)
    Professor of Surgery, LSUHSC
    Curriculum Vitae
  • Eugene A. Woltering, M.D., FACS*
    (Surgical Onocolgy/Neuroendocrine - Carcinoid Tumor)
    The James D. Rives Professor of Surgery and Neurosciences
    Chief, Sections of Surgical Oncology and Endocrine Surgery
    Director of Surgical Research
    LSUHSC Department of Surgery
    New Orleans, LA 70112
    Tel:504-884-3555-cell
    Tel:504-468-8426-home
    Tel: 504-464-8500-clinic appointments
    Bibliography
  • Yi-Zarn Wang, DDS,PC, M.D., FACS
    (General Surgery, Surgical Oncology)
    Associate Professor of Surgery, LSUHSC

    Other Team Members:
    Pam Ryan, RN, BSN, Nurse Manager/Carcinoid Coordinator
    Leigh Anne Burns, MS, LDN/RD, CNSD, Oncology Nutritionist
    Ann-Porter Uhlhorn, RN, Carcinoid Coordinator
    Maria Chester RN, Research Coordinator
    Kaci Cantrelle, Office Coordinator
    Munell Hattson-LSU Patient Service Representative
    Danaka Francois-Medical assistant

Maryland

  • Michael Choti, M.D*(Surgical Oncology)
    Department of Surgery
    Halstead 614
    The Johns Hopkins Hospital
    600 N. Wolfe Street
    Baltimore, MD 21287-4606
    Tel: 410-955-7113
    Fax: 410-614-4667
    John Hopkins Medicine,bullet">

  • Jeff Geschwind, M.D.*(Interventional Radiology)
    The Johns Hopkins Hospital
    600 N. Wolfe Street,
    Blalock 545
    Baltimore, MD 21287
    Tel: 410-614-6597
    Fax: 410-955-0233
    Appointments: 410-955-6358
    Detailed information about Dr. Geschwind
    John Hopkins Cardiovascular and Interventional Radiology

  • Stephen J. Marx, M.D (Endocrinologist/Internist)(MEN-1 specialist)
    MDB
    METABOLIC DISEASES BRANCH
    NIDDK, National Institutes of Health
    Building 10, Room 9C103
    10 Center Dr.
    Bethesda, MD 20892-1802
    Tel: 301-496-5051
    Fax: 301-496-0200
    Email: marxs@mail.nih.gov
    Comments: Research Statement:
    The Genetics and Endocrinology Section studies the genetic bases of primary hyperparathyroidism and its relations to other neoplastic disorders. We have cloned the gene for multiple endocrine neoplasia type 1 and found that it is implicated in many non-hereditary tumors. This tumor suppressor gene encodes a novel protein, menin. We are studying the actions of menin protein by yeast two-hybrid, micro-array, knockout, and other approaches. We have identified an important interaction of menin with junD, a nuclear transcription factor.

Massachussets

  • Matthew H. Kulke, M.D.*(Medical Oncology)
    Dana-Farber Cancer Institute
    44 Binney Street
    Boston, MA, 02115
    Mailstop: Dana 1220
    Tel: 617-632-5136
    Fax: 617-632-5370
    Gastrointestinal Cancer Treatment Center
    Dana-Farber Cancer Institute
  • Keith E. Stuart, M.D.*(Medical Oncology)
    Chairman of Department of Hematology/Oncology
    Lahey Clinic
    41 Mall Road
    Burlington, MA 01805
    Tel: 781-744-8400
    Fax: 781-744-5245

Michigan

  • Rex B. Mowat, M.D.
    Barbara Ann Karmanos Cancer Institute
    4100 John R
    Detroit, MI 48201
    Tel: 419-479-5605
    Fax:419-473-2049
    Appointments: 800-527-6266
    Toledo Clinic

Minnesota

  • Heidi M. Connolly, M.D.*(Cardiology)
    Mayo Clinic
    Cardiovascular Diseases Division
    200 First St SW
    Rochester, MN 55905-0001
    Mayo Clinic
    Publications
  • Edward Greeno, M.D. (Medical Oncology)
    Department of Hematology/Oncology
    University of Minnesota
    MMC 480
    420 Delaware St. SE
    Minneapolis, MN 55455
    Tel: 612-625-5411
    Fax: 612-626-1441
  • David M. Nagorney, MD *(Surgical Oncology)
    Division of gastroenterology surgey
    Mayo Clinic
    200 First St. S.W.
    Rochester, MN 55905
    To schedule an appointment please call (507) 538-3898 between 8 a.m. and 5 p.m., Monday through Friday.
  • Patricia A. Pellika, M.D.
     (additional information)
    Mayo Clinic
    Cardiovascular Diseases Division
    200 First St SW
    Rochester, MN 55905-000
    For Appointments Click Here
    Publications
  • Henry C. Pitot, M.D. (Medical Oncology, Hematology)
    Mayo Clinic
    200 First Street SW
    Rochester, MN 55905
    Tel: 507- 284-2511
    507- 538-1700
    507- 284-4137
    Comments: "My mother saw doctor Pitot and felt he was wonderful."
    Angela Merrill, coordinator of the B3 Affair fundraising event.
  • Fernando Quevedo, M.D. (Medical Oncology)
    Mayo Clinic
    Division of Medical Oncology
    200 First Street SW
    Rochester MN 55905
    Tel: 507-538-0673.
    Fax 507-284-0823 (Mayo Clinic)
    Fax: 507-379-2059 (Albert Lea Clinic)
    Comments: One of the late Rose-Mary Finley's favorite doctors. Kind, attentive and very knowledgeable about carcinoid.
  • Joseph Rubin, M.D.(Medical Oncology)
    Professor of Oncology
    Mayo Medical School
    Mayo Clinic, Rochester, MN
    Mayo Clinic and Mayo Foundation, Onc E12B
    200 First Street SW
    Rochester, MN 55905-0001
    Tel: 507-284-3903  
    Fax: 507-538-0823
  • Timothy D. Sielaff, M.D., PhD (Surgeon...see below)
    (General Surgery, Hepatobiliary and liver transplantion)
    Virginia Piper Cancer Institute Abbott
    Northwestern Hospital
    800 East 28 Street MR 39602
    Minneapolis, MN 55407
    Tel:  612-863-4633
    Fax: 612-863-4689
    Comments: Specialty:  General Surgery, Hepatobiliary Surgery (RF Ablation) and Liver Transplantation.
    Noteworthy: Timothy D. Sielaff, MD, named Medical Director of Abbott Northwestern Hospital's Virginia Piper Cancer Institute
  • Charles F. Thomas, Jr., M.D. (Pulmonology)
    Associate Professor of Medicine
    Division of Pulmonary and Critical Care Medicine
    Thoracic Diseases Research Unit
    Stabile Building 8-26, Mayo Clinic College of Medicine
    Rochester, MN 55905
    Tel: 507-284-2494 (medical secretary)
    Tel: 507-266-0414 (appointment secretary)
    Tel: 507-284-2301 (research secretary)
    Fax: 507-284-4521
    Comments: Dr. Thomas is leading a team at the Mayo Clinic to diagnose, treat, and research lung carcinoid tumors. His colleagues are Dr. James Jett, pulmonologist, and Dr. Dennis Wigle, thoracic surgeon.

New Hampshire

New Jersey

  • Robert J Giananella M.D. (Gastroentrology, Internal Medicine)
    Red Bank Gastroenterology
    365 Broad St. Ste 1
    Red Bank, NJ 07701
    Tel: 732- 842-4294
    Comments: Dr Gialanella, is a gastroenterologist familiar with carcinoid. He is local to me and one of five or six in Red Bank Gastroenterology. This doctor has a great personality and is well regarded in the community of his peers, patients, and hospital staff. He and my pcp are the only doctors I see. I treat myself and started octreotide without doing an octreoscan. My dx was May 2000; your website was extaordinarily helpful.
    RS, NJ

  • Giuseppe Condemi, M.D., Ph.D.            
    c/o Englewood Hospital & Medical Center
    Berrie Building, 1st Floor
    350 Engle Street          
    Englewood, NJ  07631
    Business: 201-568-5250
    Fax: 201-568-53558
    E-mail: gcondemi@optonline.net
    Comments: CV 
    Recommended by Judy Golz
    New Jersey Carcinoid support group leader

New Mexico

  • Glenroy Heywood, M.D.(Surgical Oncolgy)
    UNM Health Sciences Center
    Camino Del Salud  CRTC # 331
    Albuquerque, NM 87131
    Tel:  505-272-6612 ( office)
           505-925-6512 ( Pt Scheduling)
    Fax: 505-272-9499
    Specialty: Surgical Oncology

  • Ian Rabinowitz M.D.
    University - NM Cancer Treatment and Research Center
    900 Camino De Salud NE
    Albuquerque, NM 87131-0001
    View Map
    Tel: 505- 272-4551
    New patient scheduling: 505- 272-2839
    Comments: "Many of us in New Mexico see Dr. Ian Rabinowitz at the University of New Mexico in Aluquerque.  He worked with Dr. Larry Kvols when Kvols was at UNM." 

New York

  • Dimitri Alden (Surgical Oncology)
    110 Main St.
    Suite 2C
    Poughkeepsie, NY 12601
    Tel: 631-744-3671
    Fax:845-452-2104
  • Hal Gerstein, MD (Medical Oncology)
    225 Community Dr, Suite 160
    Great Neck, NY 11021
    Tel: 516-482-4790
    Fax: 516-773-3708
    Comments: Dr. Gerstein is one of the physicians used by many from the Carcinoid Cancer Awareness Network support group on Long Island, NY. Well liked and very competent For more information contact Maryann Wahmann at carcinoidaware@aol.com

  • David Kelsen, M.D.(Medical Oncology)
    Clinical Expertise:Colorectal, Esophageal, Gall Bladder, Pancreatic, and Other Gastrointestinal Cancers; Neuroendocrine Tumors; Unknown Primary Tumors
    Chief, Gastrointestinal Oncology Service; Edward S. Gordon Chair in Medical Oncology
    Memorial Sloan-Kettering Cancer Center
    205 East 64th Street
    New York, NY 10021
    Tel:212-639-8470
    Appointments for New Patients 646-497-9053
    Memorial Sloan Kettering Cancer Center New York, NY

  • Michelle Kim, MD (Gastroenterology)
    Mount Sinai Hospital
    98th Street near Fifth AVenue
    New York City, NY 10079
    Tel: (For appointments) 212- 241-4299
    Comments: Wonderful gastroenterologist.  She found out i had celiac.  It has changed my life and I am forever grateful to know what has been wrong with me all these years.
    She listens, is very attentive, and very kind.
    Reassuring and competent.
    Accepts most insurances and works with Dr. Richard Warner.

  • John S. Marino, MD
    44 South Bayles Avenue
    Port Washington, NY 11050
    Tel: 516-883-0122
    Comments: Dr. Marino is one of the physicians used by many from the Carcinoid Cancer Awareness Network support group on Long Island, NY. Well liked and very competent For more information contact Maryann Wahmann at carcinoidaware@aol.com
  • Michail Shafir M.D.*(Surgical Oncology)
    1021 Park Avenue
    New York, New York (NY)
    Tel: 212- 534-6900
    Fax: 212- 427-2193
    E-mail: michail.shafir@mssm.edu
    The Mount Sinai Medical Center, New York, NY

  • Richard R.P. Warner M.D.* (Internal Medicine/Gastroenterology)
    Professor of Medicine
    The Mount Sinai Medical Center,
    FPA Practice Associates
    5 East 98 th Street, 11th Floor
    New York, NY 10029-6574
    Tel: 212-241-4299
    Fax: 212-426-5099
    Specialty: Carcinoid/Neuroendocrine Tumors (all locations)
    CV
    Comments: About Dr. Warner Click here
  • Jerome Zacks, M.D. (Cardiology)
    Assistant Clinical Professor, Medicine / Cardiology
    1120 Park Avenue
    New York , NY 10128
    Tel:212-289-8400
    Fax:212-876-6307
    E-mail: jerome.zacks@mssm.edu
    Comments: Afilliated with Mount Sinai School of Medicine. Dr.Zacks is part of Dr. Richard Warner's carcinoid/NET's team.

New Jersey

  • Giuseppe Condemi, M.D., Ph.D.            
    c/o Englewood Hospital & Medical Center
    Berrie Building, 1st Floor
    350 Engle Street          
    Englewood, NJ  07631
    Business: 201-568-5250
    Cell: 201 686-4056 (best)
    Pager: 201-807-3826
    Fax: 201-568-53558
    E-mail: gcondemi@optonline.net
    Comments: CV 
    Recommended by Judy Golz
    New Jersey Carcinoid support group leader

North Carolina

  • Andrew S. Kennedy, MD, FACRO*.(Interventional Radiology)
    Co-Medical Director
    Wake Radiology Oncology
    300 Ashville Ave., Suite 110
    Cary, NC 27511
    Tel: 919-854-4588
    Fax: 919-854-9950
    Curriculum Vitae

  • Michael A. Morse M.D. (Medical Oncology)
    Duke University Medical Center,
    Box: 3233
    25130 Morris Bldg
    Durham, NC 27710
    Tel: 919 -681-3480
    Fax: 919- 681-0874

Ohio

  • Ronald Bukowski, M.D. (Medical Oncology)
    Cleveland Clinic Taussig Cancer Center
    9500 Euclid Avenue
    Cleveland, OH 44195
    Tel: 216-444-6825
    Comments: "The oncologist we have been seing is Dr. Bukowski at the Cleveland Clinic. Dr. Woltering was a great resource back at the beginning. I can't say enough good things about these docs".
    Carcinoid of the lung patient and family.

  • Manisha Shah M.D.*(Medical Oncology)
    Specialty: Hematology & Oncology
    Hospital Affiliation: University Hospital James Cancer Hospital University Hospital East
    Appointment Phone: 614-293-8629
    Tel: 614-293-862
    Primary Address: A438 Starling-Loving Hall
    320 West 10th Avenue Columbus, OH 43210
    The James Cancer Center, Columbus, OH
    Research Interests: Neuroendocrine and thyroid cancers; targeted therapies for cancers
    Clinical Interests: Neuroendocrine and thyroid cancers; gastrointestinal stomal tumor
  • Allan Siperstein MD *Surgery,  see special interests below
    endocrine surgery-thyroid and parathyroid, advanced laparoscopic surgery, laparoscopic adrenalectomy, laparoscopic thermal ablation of liver tumors, pancreatic endocrine tumors.
    The Cleveland Clinic Foundation Department of General Surgery:
    MAIN CAMPUS
    9500 Euclid Avenue
    Desk A-80
    Cleveland, OH 44195
    Tel: 216-444-5664
    Department of Surgery web site
    Comments: Dr. Siperstein is a radiofrequency ablation expert and has treated my liver mets for the past two years.He is not from the "wait and see" school of treatment and has a rather pleasant personality for a surgeon. By E.
  • R.Matthew Walsh, MD (GI Surgery, see special interests below)
    surgical endoscopy, gastrointestinal surgery, hepatobiliary and pancreatic surgery, laparoscopy
    The Cleveland Clinic Foundation Department of General Surgery:
    MAIN CAMPUS
    9500 Euclid Avenue
    Desk A-80
    Cleveland, OH 44195
    Tel: 216-445-7576; or
    Nancy Brown, RN
    Tel: 216-444-4195
    Department of surgery website
    Comments: Dr. Walsh found my liver mets and removed my intestinal obstruction.He is not from the "wait and see" school of treatment and has a rather pleasant personality for a surgeon. By E.

Oregon

Pennsylvania

  • Douglas L. Fraker, M.D*(Endocrine and Oncology Surgery)
    University of Pennsylvania Health System (UPHS)
    Division of Endocrine and Oncological Surgery (EOS)
    Clinical Offices:
    3400 Spruce Street
    4 Silverstein Pavilion
    Philadelphia, PA 19104
    Clinical Telephone: 215-662-7866
    Clinical Fax: 215-662-3629
    Patient Appointments: 215-662-2050
    Dr. Fraker's Laboratory and Research:
    Endocrine and Oncology
    Surgical Research
  • Harold A. Harvey, M.D. (Medical Oncology & Internal Medicine)
    Penn State College of Medicine
    Division of Hematology/Oncology
    500 University Drive, H-046
    Hershey, PA
    Tel: 717- 531-8399
    Fax: 717- 531-5076
    Website: www.pennstatecancerinstitute.com
    Comments: "I want to nominate my oncologist, Dr. Harold Harvey of the Milton Hershey Medical Center in Hershey, Pa. for the list of doctors treating carcinoid patients. Dr. Harvey is an excellent oncologist whose first interest was breast cancer but his willingness to treat carcinoid patients over the years has brought many patients to Hershey. He has a sound knowledge of the disease and is willing to consult the experts in the field when necessary.He recently remarked that he is currently seeing over 50 carcinoid patients. Dr. Harvey is backed up by an excellent group of knowledgeable physicians. He currently is accepting new patients. I have been very pleased with his care and his willingness to follow the recommendations made by Dr. Warner and other specialists."
    Thank You, Gloria Smith York, Pa.
  • David Metz, MD (Gastroenterologist)
    Hospital of the University of PA
    Dulles Building 3rd Floora
    3400 Spruce St.
    Philadelphia, PA 19104
    Tel: 215- 349-8222
  • Michael Soulen, M.D. *(Interventional Radiology)
    University of Pennsylvania Health; Division of Interventional Radiology
    Hospital of the University of PA
    1 Silverstein
    3400 Spruce Street
    Philadelphia, PA 19104
    Tel: 215- 662-6839
    Comments: Reognized by Best Doctors in America 2003-2004, 2005-2006
  • Weijing Sun, MD (Hematology-Oncology)
    Hospital of the University of Pennsylvania
    15 Penn Tower
    3400 Spruce Street
    Philadelphia, PA 19104
    Tel: 215- 662-6681
    Fax:215- 662-2432
    Tel: 1-800-789-PENN (7366)
    Comments: Dr. Sun is willing to answer questions on line. CLICK HERE to submit your question
  • Peter N. Waybill, M.D. (Interventional Radiologist)
    Dept. of Radiology HO66
    500 University Drive
    PO Box 850
    Hershey, PA 17033
    Tel: 717- 531-5417
    Fax: 717-531-4445
    Comments: Part of the team of Harold A. Harvey, M.D.(Medical Oncology & Internal Medicine)
    Penn State College of Medicine

Texas

  • Jaffer A. Ajani M.D. (Medical Oncology)
    The University of Texas M. D. Anderson Cancer Center
    1515 Holcombe Blvd,
    Houston, TX 77030
    ETel: 800-392-1611
    Fax: 713-792-6161     
    On Neuroendocrine Tumors
    M.D. Anderson Cancer Center
    Houston Texas
    (Will only accept histologically diagnosed carcinoids)
  • Ebrahim S. Delpassand, M.D., F.A.C.N.M.
    Excel Diagnostics, LTD
    9701 Richmond Ave. Ste. 122
    Suite# 122
    Houston, TX 77042
    Phone: 713.781.6200
    Fax: 713.781-6206
    Email: edelpassand@exceldiagnostics.com
    Web site: www.exceldiagnostics.com
    Contact Person:
    Christiane Assir
    Therapy Patient Coordinator
    Excel Diagnostic Imaging Clinics
    9701 Richmond Ave. Ste. 122
    Houston, TX  77042
    ( 713) 341-3239 Direct Line
    ( 713) 781-6200 Main Line
    (713) 781-6206 Fax Line
    cassir@exceldiagnostics.com
    www.exceldiagnostics.com

    Comments: It is with great pleasure to inform you that our Investigational New Drug (IND) Application  for “High Dose Indium-111 Pentetreotide (Octreotide) Therapy in Somatostatin  Receptor Expressing  Neuroendocrine Neoplasms.” has been approved by FDA. RITA Foundation in collaboration with Excel Diagnostic Imaging Clinics in Houston will provide this therapy to patients with metastatic Carcinoid.
    Learn More about     high dose indium-111 pentetreotide (octreotide) therapy

    Dr, Delpassand has been approved for a phase 1 trial of LU 177 
    (6 patients)( the first ever in the US)
    Dr Delpassand is presently applying to FDA to get approval for LU-177 treatment in the USA. We urge all in the carcinoid/NET community to write letters to FDA to support this effort. 
    see  http://www.carcinoid.org/news/index.shtml
  • Thomas Tucker, M.D. (Medical Oncology)
    Texas Oncology
    901 W. 38th Street, Suite 200
    Austin, TX 78705
    Tel: 512-421-4100
    Comments: "Dr. Tucker has a good reputation with regard to traditional cancers -- has agreed to get informed on carcinoid cancer and become the local 'expert'. The Austin-based Centex Carcinoid Cancer Support Group which serves carcinoid patients throughout central Texas, is encouraging newly diagnosed patients to see him so as to support his commitment to learn about carcinoid disease. Several MDs in San Antonio have conferred with Dr. Eugene Woltering, our carcinoid "expert" in Louisianna.
    Judith Filler at judefiller@hotmail.com- Coordinator - Centex Carcinoid Support Group
  • James C Yao M.D. *(Medical Oncology)
    The University of Texas M. D. Anderson Cancer Center
    1515 Holcombe Blvd,
    Houston, TX 77030
    Tel: -800-392-1611 or
    713-792-6161
    M.D. Anderson Cancer Center, Houston, TX
    Comments: by Dr. Yao
    We are leading the development of RAD001 trials. We have completed
    accrual to the MDA single institution trial. There are three large
    multi-institution Novartis sponsored trials.

    1. Phase II study in islet cell carcinoma after chemotherapy (either
    progression while on chemo or progression anytime after completion of 3
    courses of chemo). This study is open.
    2. Phase III study in carcinoid to open probably in January
    3. Phase III study in islet cell (prior chemo not required) to open later
    in 2007
    We have sent patient (sic) to Rotterdam for LU177 octreotate before as well.
    Patient needs to be seen for screening to make sure that they are
    eligible. There are a number of tests required by the Rotterdam group for
    the referral process. Dr.Yao's specialty is in clinical trials.

Virginia

  • Robert C Blackwood, M.D. (Primary Care and Emergency medicine)
    1201 Lake James Dr
    Virginia Beach, VA 23464
    Tel: 757- 523-0022
    Fax: 757- 523-5018
    Comments: Very aware of carcinoid and neuroendocrine tumors. Family member has carcinoid. CB
  • Paul Conkling, M.D. (Medical Oncologist)
    5900 Lake Wright Drive
    Norfolk, VA  23502
    Tel: 757-466-8683
    Fax: 757-213-5600
    Comments: "This doctor is with Virginia Oncology Associates in Norfolk, VA and is very willing to work with the top carcinoid specialists.  He is willing to take guidance and call up Dr. Woltering (my
    doc) whenever needed.  Dr. Conkling is a wonderful kind, caring carcinoid knowledgeable doctor' Susan Burke
  • James R. Daniels, M.D. (Surgical oncology)
    Pratt Medical Center
    Tompkins Martin Medical Plaza
    1101 Sam Perry Boulevard, Suite 311
    Fredericksburg, VA 22401
    Tel: 540-368-5350
    540-373-2223
    Comments: I have not had any surgery yet, but Dr. Daniel is the one I would chose here if I needed ti. He is an excellent surgeon with a good deal of cancer surgery experience. He has a reputation for being extremely fast and accurate in surgery. AS (CACS member)
  • Mark McClanahan, M.D. (Endocrinology)
    10711 Spotsylvania Avenue
    Fredericksburg, VA
    Tel: 540- 891-5350
    Comments: This is the doctor who diagnosed my carcinoid cancer and who tested and treated me for the first several months. He is an excellent and personable doctor and also does some studues and research (mostly Diabetes related). Mark also listens to his patients and is willing to consult with other doctors.
    AS (CACS member)
  • Frederick C. Tucker, Jr. M.D. (Medical oncology)
    Fredericksburg Oncology
    111 Park Hill Dr , suite B
    Fredericksburg VA 22401
    Tel: 540-368-0500
    Fax: 540-368-0618
    Comments: Dr. Tucker specializes in endocrine cancers. He also runs the palliative section of our local Mary Washington Hospital in Fredircksburg , VA . Dr. Tucker is in private practice with his wife , who is a psychiatist, so be sure to specify "Fred" if you ask for him. Dr. Tuckers office is a pleasant place to go to without the hassle s of large clinics. He is a good talker and very good listener and will work with the patients and also with other Doctors without any problem at all.. I have been his patient for almost 7 years now (Jan 2007) and have been very satisfied with the care I have received from him and his nurse. AS (CACS member)
  • Aaron I, Vinik M.D.*(Endocrinology)
    Practice Office: EVMS Diabetes Institutes
    South Campus, 855 West Brambleton Avenue,
    Norfolk VA 23510
    Tel: 757- 446-5912
    Fax: 757-446-5975
    Email Address: vinikai@evms.edu 
    Eastern Virginia Medical School

Washington, D.C.

With kind permission from the Capitol Area Carcinoid Survivors CACS support group view a list of (34) doctors, both specilaists and local doctors used by the CACS support group CLICK here.

Comments: "Doctors Our Members Have Seen or Consulted With"
The Doctors on this list will follow the motto, " If you don't suspect it you can't detect it." Many physicians are located in nearby states such as Maryland and Virginia.

Washington

  • Eric M. Feldman, M.D. (Medical Oncology)
    Group Health Cooperative
    Section of Hematology/Oncology
    Suite Cmb5
    201 16th Avenue East
    Seattle, WA  98112-5226
    Tel: 206-326-3119
    Fax: 206-326-2010
    Comments: "Works with specialist Dr. Richard Warner in New York, NY." PNW, OR
  • Samuel H. Whiting, MD, PhD
    Seattle Cancer Care Alliance
    825 Eastlake Ave E
    PO Box 19023
    Seattle, WA 98109-1023
    Tel: (800) 804-8824
    Tel: 206-288-7222
    Fax: 206-288-1025
    Comment: Recommended by the PNW Carcinoid Cancer Support Group- Washington Chapter

Wisconsin

  • Herbert Chen, M.D* (Surgical Oncology)
    The University of Wisconsin-Madison
    H4/750 Clinical Science Center
    600 Highland Avenue
    Madison, WI 53792-7375
    Tel:  608-265-7030 (appointments) thru Sarah Schaefer, NP
            608-263-1387 (office)
    Fax: 608-263-7652
    E-mail: chen@surgery.wisc.edu

International Specialists

Argentina

  • Fabiana Marmissole, M. D. (Medical Oncology)
    ARGNETUM (Argentine Group od Neuroendocrine Tumors)
    69 786
    1900 La Plata
    Argentina
    Tel: +54 221-452-7158
    Fax: +54 221-483-7484
    E-mail: marmissolle@slider.com.ar

Asia

Australia

  • J. Harvey Turner, M.D., F.R.A.C.P (Interventional Radiology)
    Department of Nuclear Medicine,
    Fremantle Hospital and Department of Medicine 
    P. 0. Box 480
    Fremantle WA 6160
    Tel:(Country code to Australia is  +61 (08) 9431-3333  ( ask for Nuclear Medicine deapartment)
    Western Australia
    Australia
    E-mail: Harvey.Turner@health.wa.gov.au
    Comments: Read this fascinating description by a patient who has undergone the LU-177 isotope treatment in Australia under the supevision by Dr. Turner..
    Eric's carcinoid journey and experience with LU-177 treatment

Brazil

Canada

  • David Liu, M.D. (Interventional Radiology)
    Clinical Assistant Professor
    Vancouver Hospital
    University of British Columbia
    Vancouver, BC
    Tel: 604-875-4533
    Tel: Shuman Ehoonah 604-875-5776 for appointments
    Comments: specialist in Yttrium 90 treatment for liver
    metastases, Radiofrequency ablation, cryoablation, chemoembolization, diagnostic imaging and response
  • Richard Malthaner, M.D.
    Assistant Professor
    Division of Thoracic Surgery and the
    Department of Epidemiology & Biostatistics
    London Health Sciences Centre
    The University of Western Ontario Web: http://www.uwo.ca/epidem
    Kresge Building, Room K201,
    London, Ontario, Canada N6A 5C1
    Tel: 519- 667-6835
    Fax: 519- 667-6762 E-mail: richard.malthaner@lhsc.on.ca
    Peter Metrakos, M.D.(Surgeon)
    Associate Professor
    Director of Multi-Organ Transplantation, MUHC
    Director of Hepatic, Pancreatic and Biliary Surgery, McGill University
    S10.26, 687 Pine Avenue West
    Montreal, Quebec
    Tel: 514-843-1600
    FAX: 514-843-1600H3A 1A1
    Comment:
    • Dr. Metrakos is Director of Pancreas Transplantation and the Section of Hepatic, Pancreatic and Biliary Surgery at McGill University Health Center in Montreal
  • Janice Pasieka, M.D., FRCSC FACS*
    Clinical Professor of Surgery and Oncology
    Chief, Division of General Surgery
    University of Calgary
    1403 -29th Street NW
    Calgary, Alberta
    T2N 2T9
    CANADA
    Tel: 403-670-2491
    Fax: 403-283-4130

    London Health Sciences Centre
    London Regional Cancer Program
    800 Commissioners Road East
    PO Box 5010
    London, Ontario N6A 5W9
    Tel.: 519-685-8500
    The Carcinoid Team;
    Walter Kocha, M. D * (Medical Oncologist)
    Tel:: 519-685-8640
    Fax: 519-685-8624
    E-mail: walter.kocha@lhsc.on.ca
    Clinical Trials:
    SSOM230 Dr. W. Kocha A Phase I, Multicentre, Open-Label, Randomized Study Assessing the Pharmacokinetics, Safety and Tolerability of Monthly Doses of SOM230 IM LAR Injection in Patients with Acromegaly and Patient with Carcinoid Disease
    RAD001 Dr. W. Kocha An Open Label Stratified, Single-Arm Phase II Study of RAD001 in Patients with Advanced Pancreatic Neuroendocrine Tumor (NET) After Failure of Cytotoxic Chemotherapy pecialty: Hematology
    Dr. Robert H. Reid,* (Nuclear Medicine)
    Department of Nuclear Medicine
    375 South Street
    London, Ontario, N6A 4G5
    Tel: 519- 667-6566
    Rosemary Davidson, (Primary Nurse) working with Dr. Kocha
    Lisbet Williams, (Primary Nurse)
    Comments: LRCC is a source of hope and comfort in dealing with neuroendocrine tumours and the resultant carcinoid syndrome. WG
  • Juan Rivera, M.D., FACE (Endocrinologist)
    Medical Director
    McGill Neuroendocrine Tumor Program (McNETP)
    Attending Physician, Division of Endocrinology
    McGill University Health Centre
    Assistant Professor of Medicine
    McGill University
    Royal Victoria Hospital
    687 Pine Av West, Office M9.54
    Montreal, Quebec H3A 1A1
    Tel: 514- 934-1934 Ext. 34662
    Fax: 514- 843-2838
    Montreal General Hospital
    1650 Cedar Av, Office C6.240
    Montreal, Quebec H3G 1A4
    Tel:. 514- 934-8335
    Fax.514- 982-8361
    More Contact Information

Italy

  • Emilio Bajetta, M.D.*(carcinoid specialized oncologist)
    Oncologia Medica B -
    Istituto Nazionale Tumori Via Venezian
    1 20133 Milano
    Italy
    Tel: 02.2390500
    Fax: 39/02-23902199 Cell: 0335.8195129
    E-mail: gruppo.itmo@tiscalinet.it
  • Gianfranco Delle Fave, M.D.*( Medical Oncology)
    Università "La Sapienza", Roma Cattedra di Gastroenterologia 1,
    II Clinica Medica, Policlinico Umberto 1,
    Viale del Policlinico 155,
    00161 Roma,
    Italy.
    Telefon: +39 6 4 45 52 92, fax: +39 6 4 46 37 37.
    E-mail: gianfranco.dellefave@uniroma1.it

Japan

  • Morio Sato, MD, Ph.D (carcinoid specialized oncologist)
    Publications
    Chairman & Professor
    Department of Radiology
    Wakayama Medical University
    811 Banchi 1,
    Kimiidera,
    Wakayama-shi, 641-8510
    Japan
    Tel: +81 -73-441-0604
    Fax: +81-73-444-3110
    E-Mail: morisato@mail.wakayama-med.ac.jp

Europe

To find a Carcinoid/NET specialists in Europe other than those listed below we suggest that you visit the website of the European Neuroendocrine Tumor Society ENETS.

  • The European Neuroendocrine Tumor Society (ENETS) is composed of physicians whose main mission is to increase awareness and knowledge of neuroendocrine tumors and to promote education through the dissemination and sharing of information in the medical community . These physicians also help to increase awareness within the general public of these often rare conditions by working closely with global support groups.
    Website: http://www.neuroendocrine.net
    Contact:
    Tel:+49 (30) 450-553096
    Fax:+49 (30) 450-553942
    email: enets.office@charite.de

France

  • Philippe Ruszniewski.* M.D.
    Professor of Gastroenterology
    Chief of Division of Gastroenterology and Pancreatology
    University of Paris VII
    Medical Surgical Federation of Hepatogastroenterology
    Beaujon Hospital
    100 boulevard du Général Leclerc
    92118 -CLICHY-CEDEX

    Tel: 33 (0)1.40-87-53-28
    Fax: 33 (0)1.42-70-37-84
    E-mail:phillipe.ruszniewski@bjn.aphp.fr
    Contact person: Hélène Goudal
    E-mail: sec.ruszniewski@bjn.aphp.fr

Germany

  • Rudolf Arnold, M.D.*
    Zentrum fur Innere Medizin
    Klinikum der Philipps-Universität Marburg
    Baldingerstrasse 1
    d-35033 Marburg
    Germany

  • Bertram Wiedenmann, M.D.*
    Dept. of Internal Medicine
    Div. of Hepatology, Gastroenterology,
    Endocrinology and Metabolism
    Charité, Humboldt University
    Campus Virchow-Klinikum
    Augustenburger Platz 1
    D-13353 Berlin
    Tel. +49 (30) 450-553022
    Fax: +49 (30) 450-553902
    Contact:: Elizabeth Zach
    Elizabeth.Zach@charite.de
    http://www.charite.de/hges/

Netherlands

Sweden

  • Håkan Ahlman , MD, PhD*
    Professor of Endocrine Surgery
    Department of Surgery
    Gothenburg University
    Sahlgrenska University Hospital
    S-413 45 Gothenburg
    Contact:info@carcinoid.se
    Tel: +46 ( 31) 342-1778 (office)
    +46 (31) 342-8088 (mobil within hospital)
  • Department of Medical Sciences ( Uppsala )
    The section of Endocrine Oncology, Uppsala University Hospital, is the national referal center for patients with neuroendocrine tumors. At the section of Endocrine Oncology basic scientific research is combined with improvement of diagnostic procedures and medical treatment of neuroendocrine tumors. To the specialized ward with 15 beds patients are referred from all over Sweden as well as from the Nordic countries, Europe, the Middle East, South America and USA for diagnosis and treatment.

Senior members of the group include:

United Kingdom

  • Professor Niegel Bax*
    Asian Sheffield Medical College
    11 A, Medan Istana 3
    Bandar IPOH Raya
    3000 IPOH
    Perak
    Malaysia
    Tel: 605-242 1270
    Fax: (In UK ) 011-44-114-271-1777
    Tel: (Kualalmpur) 60-3-253-9070
           (IPOH) 60-5-242-1270
    Mobile: 011-60-12-202-3901

  • Professor Steven Bloom* (endocrinology)
    Professor Humphrey Hodgson (gastroenterology)
    Department of Medicine
    Gastroenterology Unit
    Royal Postgraduate Medical School
    150 Ducane Road
    London W12 OHS
    England
    Tel: 44 181 7432030

  • Martyn Caplin, M.D.*
    Consultant in Gastroenterology & Hepatobiliary Medicine
    Centre for Gastroenterology
    10th Floor
    Royal Free Hospital
    Pond Street
    London, NW3 2QG
    UK
    Direct number: 44 (0)20- 830-2867
    Fax number: 44 (0)207-472-6728
    Contact person: Catherine.Purcell@rfh.nthames.nhs.uk
  • Karim Meeran MD*
    Hammersmith Hospital
    150 Ducane Road
    London W12 ONN
    England
    Tel: 44-181-383-3242
    Fax: 44-181-383-3142
    Email: kmeeran@rpms.ac.uk

********************************************************************************

DISCLAIMER:

You should be aware that not all the doctors listed here have the same treatment approach. You must make your own inquiries as to whether a particular doctor's approach agrees with how you want to treat your condition. In that regard, talking to your family doctor, and other carcinoid patients, whether at a local support group or in one of the online groups may help you make your decision.

Support groups are also an excellent source for information about local doctors who have gained experience in treating carcinoid/NETs.

No endorsement by the Foundation is intended of any of the doctors on this list , nor should an endorsement be inferred or implied.

 
Last Modified: Monday, 15-Mar-2010 02:17:35 EDT

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