Second Annual International Patient Symposium on Pheochromocytoma and Paraganglioma

06/20/2013 - 06/21/2013

Pheochromocytoma and paraganglioma patients, loved ones, and healthcare professionals are invited to attend this symposium scheduled for June 20-21, 2013, NIH campus, The Cloisters in Bethesda, Maryland. There is no charge for attendance for patients but registration is required.

Among the topics to be covered are Anatomical and Functional Imaging, Genetics, Pregnancy and Pheo, Surgery of Pheochromocytomas and Paragangliomas, Radiofrequency Ablation, Chemotherapy and Other Approaches to Treatment of Metastatic Pheo/Para, Radionuclide Therapy of Metastatic Pheo/Para, Pain Management, Nutrition, Nurturing the Family's Resilience in Times of Crisis, and Patient Navigators.

The Opening Welcome will be given by Alan E. Guttmacher, Director of NICHD.  Internationally recognized pheochromocytoma and paraganglioma specialist, Dr. Karel Pacak, will talk about "Pheo Para Research -- Recent Achievements and Future Visions."  The Symposium will also include presentations by Margarita Raygada PhD, Dr. Jacques Lenders, Dr. Marybeth Hughes, Dr. Philip Corcoran, Dr. Aradhana Venkatesan, Dr. Tito Fojo, Dr. Jorge Carrasquillo, Laura Pole MSN, Dr. Jeff D. White, Cynthia R. Ronzio PhD, Julie Hoehl, and from the NICHD National Center for Neuroendocrine Tumors, Kathryn King, Victoria Martucci, Jaydira Del Rivero, and Isabel Garcia.

For the conference program, CLICK HERE.

To register, please contact


Neuroendocrine Cancer: Making Sense of the Disease -- Dr. Eric Liu to Speak in Dallas

06/08/2013 - 11:00am - 1:00pm

Carcinoid Cancer Texas Survivors Support Group

Dr. Eric H. Liu, Director of the Neuroendocrine Center at Vanderbilt University Medical Center in Nashville, Tennessee, will be the guest speaker for the Carcinoid Cancer Texas Survivors Support Group meeting on June 8. Dr. Liu is a surgical oncologist whose major focus is neuroendocrine tumors. He actively engages in research, developing new biomarkers and imaging techniques for better diagnosis of neuroendocrine tumors

The program is open to physicians, neuroendocrine cancer patients and caregivers, at no charge.  The presentation will be at the Baylor Hospital, Beasley Auditorium, First Floor Truett Building, 3600 Gaston Avenue, Dallas, TX  75246.  For further information, contact Sandy Arnold at Visit the Carcinoid Cancer Texas Survivors Support Group website for more information about the group.

NET Cancer Patient Conference -- Rochester, Michigan

06/08/2013 - 8:00am - 4:00pm

The Carcinoid Cancer Awareness Network (CCAN) is presenting a NET Cancer Patient Conference in Rochester, Michigan at the Royal Park Hotel, 600 East University Drive.  For the program, CLICK HERE. For further information contact CCAN at 866-850-9555 or

Multiple Endocrine Neoplasia Seminar at the Mayo Clinic, Rochester, Minnesota


The American Multiple Endocrine Neoplasia Support, in collaboration with the Mayo Clinic, will present the 2nd Annual MEN Seminar on June 7, 2013 at the Mayo Clinic in Rochester, Minnesota.  This is an event created especially to educate and support MEN patients, their families, and medical personnel. The program will include discussion about MEN Type 1, MEN Type2A, MEN Type 2B, and MEN Type 4.  There will be extensive discussion about the genetics of MEN and the New Guidelines for Physicians and Families for their continued MEN treatment. 

Among the topics to be discussed are:

  • Genetics and MEN
  • MEN Endocrinology Updates on:
    • Pituitary
    • Pancreas
    • Parathyroid
  • MEN Specialty Areas Involving:
    • Surgery
    • Radiology
    • Pharmacology

The DoubleTree Hotel has set aside a block of rooms at a special rate for seminar participants and is within walking distance to the Mayo Clinic.  The Hotel has a free shuttle service to Rochester area locations and can also transport guests to The Mall of the Americas and Minneapolis Airport for a fee.

For more information contact The Hageman Foundation, toll-free at 866-612-8579 Click here to register for the Seminar online.

New Jersey Carcinoid Cancer NETwork Mini-Symposium on Carcinoid and Neuroendocrine Tumors

06/02/2013 - 1:00pm - 4:30pm

Ask the Experts, a half-day, mini-symposium on carcinoid and neuroendocrine tumors will be presented by the New Jersy Carcinoid Cancer NETwork, in cooperation with Holy Name Medical Center, Oncology Department, in Teaneck, New Jersey.  Local and national NETs specialists will give an overview of carcinoid and NETs with the focus of the day being an extended, moderated Question and Answer period.  Patients, caregivers, and medical professionals are encouraged to attend.  For the symposium program, directions, and further information, click here.

B3 Affair Bid, Bet & Buy for Life


Lois Merrill Foundation fundraiser for carcinoid and NET cancer patients

The Lois Merrill Foundation presents Art on the Edge on Saturday, April 27, 2013 in San Diego, California (location to be announced), with proceeds to benefit carcinoid/NET cancer patients.  This wonderful event will include visual and still art, casino gaming, a silent auction, and fun for all.

Art on the Edge, Lois Merrill Foundation fundraiser for carcinoid and NET cancer patients

An Integrative Approach to the Management of NETs

04/20/2013 - 8:15am - 1:30pm

The University of Kentucky College of Medicine and the Carcinoid Cancer Awareness Network (CCAN) will present An Integrative Approach to the Management of NETs on Saturday, April 20, 2013 in Lexington, Kentucky.  The conference will include presentations by carcinoid/NET specialists Dr. Lowell Anthony and Dr. Eric Liu on clinical trials, PRRT, symptom control and targeted therapies; information about nutrition, enzyme and vitamin support; family and financial challenges; ways to improve quality of life and relieve stress by a Jin Shin Jyutus practitioner; and Patient or Survivor -- a panel discussion with faculty.  Guests can stay at the Hilton Lexington Downtown.  For more information and registration, click here or contact CCAN at 866-850-9555 or by email at

NANETS 2013 Neuroendocrine Tumor Regional Conference

04/19/2013 - 04/20/2013

The North American NeuroEndocrine Tumor Society (NANETS), in conjunction with the University of Kentucky College of Medicine, is presenting a forum designed for physicians and other health professionals from a variety of settings and levels to include the specialities of oncology, endocrinology, surgery, pathology, internal medicine, gastroenterology, nuclear medicine, nursing, nutrition, diagnostic radiology, interventional radiology, and primary care.  Leading experts in the field will discuss, through lectures and panel discussions, the different aspects of diagnosis, histopathology, surgery, hepatic directed therapy, and various systemic treatments targeted to specific NET origins. There will be several opportunities for audience questions and networking with faculty.

Continuing medical education (CME) credit is available through the University of Kentucky College of Medicine.

The conference will be held in Lexington, Kentucky on April 19 and 20, 2013.

For more information, CLICK HERE.

NANETS 2013 Regional Conference in Lexington, Kentucky

Los Angeles Patient Education Seminar

04/13/2013 - 11:30am - 5:00pm

The Caring for Carcinoid Foundation (CFCF) will present a free, educational conference for patients and caregivers at the Harvey Morse Auditorium at Cedars-Sinai on 8700 Beverly Boulevard in West Hollywood, California on Saturday, April 13, 2013.  This half-day conference will focus on the latest in neuroendocrine cancer diagnosis and treatment.  Expert speakers will give brief lectures and then answer questions from patients and caregivers in a moderated discussion.  The program will include lunch. The event is free.  Parking is available in Lot 4 (P4), validated parking will be $5.00.

For registration and more information, CLICK HERE to visit the CFCF website.



Lung Neuroendocrine/Carcinoid Cancer Patient Conference

04/13/2013 - 8:30am - 5:00pm

Lung carcinoid patients will have a unique opportunity to attend a conference spefically geared to this type of neuroendocrine cancer with presentations by one of the world's leading experts in bronchial carcinoids, Dr. Dan Granberg (pictured) from Uppsala University in Sweden; Dr. Eric Liu, Director of the Neuroendocrine Center at Vanderbilt University Medical Center; and Dr. Ronald Walker, Professor of Clinical Radiology and Radiological Sciences at Vanderbilt-Ingram Canter Center. The conference is being presented by CCAN, the Carcinoid Cancer Awareness Network, at Vanderbilt-Ingram Cancer Center in Nashville, Tennessee on Saturday, April 13, 2013.  Prior to the conference, on April 11 and 12, patients will have the opportunity to meet with both Drs. Granberg and Liu for clinic visits at Vanderbilt-Ingram Cancer Center. Hotel accommodations for guests are available at the Courtyard Vanderbilt/West End and the Hilton Garden Inn. For further information and reservations (there is a $20.00 per person registration fee), click here.