Carcinoid/NET Patient Education Day - State of Washington

10/25/2014 - 8:45am - 4:30pm

The PNW Carcinoid/NET Support Group will present a day of learning and support for carcinoid/NET patients and their loved ones at UW Medicine in Seattle, Washington on Saturday, October 25.  The featured speakers are Veena Shankaran, MD on "Systemic Therapy Option for Advanced Neuroendocrine Tumors" and Flavio Rocha, MD on "The Role of Local Therapy for Metastatic Carcinoid and PNETs."  There will also be presentations by a nutritionist, a yoga and meditation practitioner, and a nurse educator. For more information and to register, click here.

Philadelphia Patient Education Conference, 4th Annual Focus on Neuroendocrine Tumors

10/24/2014 - 8:00am - 2:30pm

The Caring for Carcinoid Foundation and the University of Pennsylvania's Abramson Cancer Center will once again be partnering to host a Patient Education Conference in Philadelphia. Patients, family members, caregivers, and healthcare professionals are invited to attend in-person or via Live Streaming from the conference. Edward M. Wolin, MD will be the keynote speaker. A $20.00 per person tax-deductible donation is suggested.  Click here to register. Click here to see the program.

Living with Neuroendocrine Cancer: The Second Annual Conference for Patients and Caregivers

10/18/2014 - 11:00am - 4:00pm

Neuroendocrine tumor patients and caregivers are invited for an afternoon of networking and information gathering, sponsored by the Roswell Park Cancer Institute in Buffalo, New York, on Saturday, October 18. Renuka Iyer, MD, Section Chief for Gastrointestinal Oncology and Co-Director of the the Liver and Pancreas Tumor Center at Roswell Park, will welcome guests and also speak on Advances in Neuroendocrine Cancer CareFor a complete agenda, lodging options, and to register, click here.

3rd Annual Dean Paras Memorial 5K Cross Country Run/Walk for Neuroendocrine Cancer Research


Run, walk, or cheer on all participating in the 3rd Anuual Dean Paras Memorial 5K on Sunday, October 12th at University School in Hunting Valley, Ohio.  Registration begins at 11:30 am and the Run/Walk starts at 1:00 pm.  Malina Papanikolaou has organized the event in memory of her cousin, Dean Paras (pictured), who lost his battle with neuroendocrine cancer at the age of 26 in 2011.  The Run/Walk is both an opportunity to raise awareness of this often misdiagnosed rare disease and to support life-saving research.  The first two events, with over 350 participants at each, raised over $62,000 in support of neuroendocrine cancer research at Vanderbilt University in Nashville, Tennessee.  Several levels of sponsorships are available and individual donations are welcomed.  For further information contact Malina Papanikolaou,,  or Toni Papanikolaou,, 440-838-1785.  Click here for the registration form and click here for the run/walk poster.

NANETS Annual NET Conference

10/09/2014 - 10/11/2014

NANETS 7th Annual NET Conference

The North American NeuroEndocrine Tumor Society (NANETS) will present its 7th Annual NET Conference from October 9 to 11, 2014 in Nashville, Tennessee. 

Multiple Endocrine Neoplasia (MEN) Patient, Family, and Medical Professionals Seminar


American Multiple Endocrine Neoplasia Support

Multiple endocrine neoplasia (MEN) patients, their families/friends, and medical professionals are invited to attend a free, half-day education seminar presented by the Mayo Clinic in Rochester, Minnesota, in partnership with American Multiple Endocrine Neoplasia Support.  Topics include A Brief Overview of MEN-1, Thyroid & Parathyroid Surgery, Pancreatic Surgery, Pituitary Surgery, Adrenal Surgery, Hospital and Surgical Care Panel, Genetics of MEN, and MEN Long-Term Follow-up Care.  Following the seminar, AMEN Support will host a reception at the Doubletree Hotel in Rochester from 5:30 pm to 9:00 pm.

Hill Day with Society of Nuclear Medicine and Molecular Imaging & NorCal CarciNET Community

09/30/2014 - 8:30am - 4:00pm

Capitol Hill, Washington, DC

The NorCal CarciNET Community will be visiting Washington, DC on September 30 with the Society of Nuclear Medicine and Nuclear Imaging (SNMMI).  You are invited to join them to meet with your representatives -- help educate them about carcinoid/NETs as well as the advancements in nuclear medicine that are benefitting NET patients.  There is no cost to participate.  Participants are asked to be available on the afternoon of Monday, September 29 for an orientation session.  Click Here  for more information and to register.

AMEND USA Roadshow Meeting Florida


The AMEND USA team and specialist medical professionals from the H. Lee Moffitt Cancer Center will present a free, day-long program in Port Charlotte, Florida.  The agenda will include updates on AMEND USA and AMEND UK, diagnostic/pre-symptomatic screening strategies for MEN1 and 2, living with MEN1 and MEN2b, surgical approaches, role of an endocrine nurse, and the current state of disease/therapeutic research and where things may be going. Click here for more informaton and to register.

World MEN 2014

09/25/2014 - 09/27/2014

World MEN International Workshop, Vienna, 2014

The 14th International Workshop on Multiple Endocrine Neoplasia and Other Rare Endocrine Tumors will be held from September 25-27, 2014 in Vienna, Austria.  Topics to be covered include:  Genetic Aspects of Pituitary Tumors, MEN1 and Hereditary Hyperparathyroidism, MEN1 and the Pancreas, MEN2 - Rare RET Mutations, Hereditary Pheochromocytoma and Paraganglioma, Treatment of Advance Endocrine Tumors, and MEN: New Experimental and Clinical Developments. For further information, visit the website

2014 National NET Patient Conference

09/18/2014 - 09/21/2014

The 2014 National NET Patient Conference will be held September 18-20 at the Charlotte Marriott City Center Hotel, 100 West Trade Street, Charlotte, North Carolina. On September 21 there will be a special half-day program on lung carcinoid and DIPNECH. Registration is now open. For a conference schedule and to register, CLICK HERE. The Carcinoid Cancer Awareness Network is the conference sponsor.