Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences
Several patient-oriented carcinoid seminars and conferences are held each year. In this section, you can find videos and lecture transcripts by prominent carcinoid and neuroendocrine tumor (NETs) specialists.
These lecture transcripts, and video recordings give both simple and more in-depth information about carcinoid and other neuroendocrine tumors (NETs). We suggest that patients read and listen to these transcripts after reading the initial general information for patients.
In 2012, the Carcinoid Cancer Foundation began a new series of videos featuring carcinoid/NET specialists and patients. Read more about the series here. These videos are made possible thanks to the generosity of Kim, Heather and Lauren Simpson and other family and friends and were created in "loving memory of Cheryl Stanley Simpson of Gainesville, Florida."
Find lectures/videos from:
COPYRIGHT NOTE: Direct linking to any of these transcripts, podcasts, or video recordings is prohibited.
NOTE: Videos in this section are best viewed with Adobe Flash Player. If you are unable to view pictures of the lecturers (from high speed broadband connection), make sure that you use Adobe Flash Player installed and that Real Player is uninstalled.
- The ABC's of Carcinoid and Neuroendocrine Tumors
- Faces of Hope
- Surgery and Treatment Options: Carcinoid and Neuroendocrine Tumors
- Why I Became Interested in Carcinoid/NETS
What prompted carcinoid and neuroendocrine tumor specialist Dr. Eugene Woltering to become interested in these rare cancers?
- New Jersey Carcinoid Cancer Network conference
November 5, 2011
Carcinoid/NETs: Not Your Average Cancer
These videos are made possible through a collaborative effort of the New Jersey Carcinoid Cancer Network and the Carcinoid Cancer Foundation.
The symposium videos can be viewed here in order of presentation:
- Introduction and Welcome, Jim Weiveris and Judy Golz
- Richard R.P. Warner, MD (presentation is in two parts)
- Michael Soulen, MD
- Robert Fine, MD
- Guiseppe Condemi, MD
- Rodney Pommier, MD
- Q & A
- CCF's 14th Annual Carcinoid NETs Symposium
Mt. Sinai Medical Center, New York, NY
May 1, 2011
Neuroendocrine Tumor Management: The Era of Personalized Medicine
Read More about the Symposium.
Due to technical difficulties the question and answer period following Dr. Wolin’s presentation is not available in a video format.
The symposium videos can be viewed here in order of the presentations:
- Keith Warner
- Richard R.P. Warner, MD
- Edward M. Wolin, MD
- Eugene A. Woltering, MD
- Q & A with Dr. Woltering
- Patient Panel moderated by Gilles Frydman
- International Carcinoid NET Conference and Symposium for Patients and Medical Professionals
Vancouver, British Columbia, Canada
May 13-16, 2010
With kind permission from the Canada NeuroEndocrine Tumor Society CNETS, we present NeuroEndocrine Cancers: Networks of Expertise. The conference featured distinguished neuroendocrine cancer experts from Canada, the United States, the United Kingdom, Ireland, the Netherlands, and Sweden. All lectures except for two are reproduced here. Those lectures will be released at a later date.
- CCF's 13th Annual Carcinoid NETs Symposium
Mt. Sinai Medical Center, New York
April 11, 2010
Determining Molecular Signature: A Guide for Targeted Therapy of Neuroendocrine Tumors
Imagine a treatment created just for you as a carcinoid or other neuroendocrine tumor patient based upon a personalized genomic analysis. This is the cutting-edge research which is the focus of the work of Michael J. Demeure, MD, MBA, and his team at TGen, the Translational Genomics Research Institute, based at the Virginia G. Piper Cancer Center, Scottsdale Healthcare, in Arizona. Dr. Demeure talked about this research when he was the guest speaker for the Carcinoid Cancer Foundation’s symposium.
- 2009 National Carcinoid/NET Patient Conference
New Orleans, Louisiana
September 24-25, 2009
The Carcinoid Cancer Awareness Network (CCAN) in association with Ochsner Medical Center, Kenner held the 2009 National Carcinoid / NET Patient Conference at the Astor Crowne Plaza Hotel in New Orleans in September. The conference was attended by some 500 patients, family members, caregivers, and physicians.
With kind permission from the Carcinoid Cancer Awareness Network we present video recordings from the conference.
View the video here.
- CCF's 12th Annual Carcinoid NETs Symposium
Mt Sinai Hospital New York, NY
ON THE CUTTING EDGE
The theme of the lectures were advances in surgical care for carcinoid and neuroendocrine tumors. The talk featured presentations by distinguished guest speakers Dr. Philip J. Boudreaux, Surgeon and Professor of Surgery at Louisiana State University Hospital School of Medicine (in Kenner, Louisiana) and Dr. Rodney F. Pommier, Surgeon and Professor of Surgery at Oregon Health Sciences University Cancer Institute (in Portland, Oregon).
With kind permission from the Canada Neuro-Endocrine Tumor Society CNETS, we present video recordings from their first International Carcinoid Neuroendocrine Conference for Patients and Medical Professionals in Toronto, Ontario, Canada on October 16 - 19, 2008
Video recordings of lectures from the Carcinoid Cancer Foundation's (CCF) 11th Annual Carcinoid/NET's Conference
"Progress in Research and Treatment"
April 13, 2008 at Mount Sinai Hospital New York, NY
Herbert Chen, MD, Madison, WI
Andrew S. Kennedy, MD, Cary, NC
Webcasts from NANETS' first Professional Conference, February 8-9, 2008, Southampton, Bermuda.
Current Management Strategies
When NET diseases have advanced, what treatments are most effective? Experts in the field are continually improving treatment strategies and developing new approaches to symptom control.
With kind permission we here report video recordings from The Carcinoid Cancer Awareness (CCAN) 3rd annual patient conference November 11, 2007, is now available online. Access and view them from their website.
"Providing Empowerment of Knowledge Together For Life and the Quality of Life"
Thursday, September 27 – Sunday, September 30, 2007
Sheraton Waterside Norfolk Hotel
Carcinoids: The Slow Pace of Rapid Progress
Presented by the Carcinoid Cancer Foundation.
Mount Sinai Hospital, New York, NY
This conference was for patients, family, friends and medical professionals. Our guest speaker was Dr. Irvin M. Modlin from Yale University School of Medicine, New Haven, CT.
- 3rd Annual Carcinoid Cancer Awareness Network (CCAN) conference
November 11, 2006, Long Island, NY.
Listen to Drs. Gerstein, Goldsmith,Woltering,Warner,Vinik and Gardner lecturing on "The Diagnosis and Treatment of Carcinoid Cancer / NET Tumors"
- National Carcinoid/NETs conference in Portland, OR
September 2006 Portland, OR 2006
To view the conference recording, click here
Note: These video recordings can ONLY be viewed in Internet Explorer.
Acknowledgment: Production of these video recordings was made possible by a generous educational grant from NOVARTIS ONCOLOGY.
One full set of DVDs and CD-ROMS will be produced and distributed to all support groups in time. Please note that it is a very complex and time-consuming process to produce these video recordings and DVDs or CD-ROMS. Remember that when done you will have access to 30 lectures by the world's leading carcinoid/NET specialists. We appreciate your patience.
View the evaluation and comments by a patient attending the conference.
This event was coordinated and executed by Kari Brendtro and Corie Dean from the Pacific Northwest (PNW) carcinoid/NET support group and cosponsored by The Carcinoid Cancer Foundation.
- Carcinoid/Neuroendocrine Tumors: Diagnosis and Treatment
Presented by the Carcinoid Cancer Foundation.
April 2, 2006 at Mount Sinai Hospital, NYC
What’s Tried and True – What’s New?
A symposium for patients, caregivers, family, friends, & medical professionals
Guest Speaker: James C. Yao, MD, MD Anderson Cancer Center, Houston, TX
- The National Carcinoid-NET Conference 2005 (For Patients)
was held on September 22, 23 and 24th in Philadelphia, PA
The Philadelphia Committee, in partnership with NAAPNET and the Carcinoid Cancer Awareness Network (CCAN), should be proud of this successful conference.
- Living with Carcinoid 2005 - Hope for the Future
Metro New York Carcinoid Support Group
Drs. Richard Warner, Matthew Kulke and Shankar Vallabhajosula
MNYCSG Patient Conference - Sunday April 10, 2005
- Carcinoid Conference 2004 (video recording)
In New Orleans, LA
September 23-24, 2004
- This conference was designed to make patients with this rare disease aware of the most recent medical information concerning the diagnosis and management of their tumors. The fourteen speakers included the world experts on carcinoid and carcinoid syndrome.These individuals presented the latest, often unpublished, updates on these tumors.
- “This conference represents the cutting edge of medical information dispersal. Getting life saving information to patients with this exceedingly rare disease allows the patient to educate their local doctors rather than the usual paradigm in which physicians are the ones with the knowledge.” Dr. Eugene Woltering of LSUHSC
Presentations by (1. Physicians in order of appearance): Drs. Larry Hollier, Eugene Woltering, Richard Warner, Thomas M. O'Dorisio, Lowell Anthony, Larry Kvols, Louis Linares, Daniel Frey, Jay Thomas, (2. other nonphysician contributors); Gregory Espenan; Mary Hardy; Barbara Schwerin,JD; Leigh Anne Geisler Burns, LDN/RD; Charles Kerwood )
- Carcinoid 2004: Update on Diagnosis and Management
VIDEO by Richard R.P. Warner MD on October 16, 2004 in Washington DC, coordinated by the Capitol Area Carcinoid Survivors (CACS)
- Carcinoid Tumors: What's a Patient to Do?
Professor Kjell Öberg (Sweden) on November 1, 2003 in Washington DC. The video (and written transcript) can be accessed from the Capitol Area Carcinoid Support Group (CACS) website
- Carcinoid Treatment Today and Tomorrow:
Carcinoid Conference 2003
(for Carcinoid Patients, Caregivers, Family, and Friends) Coordinated by California Carcinoid Fighters (CalCF)
Saturday October 25, 2003
Santa Ana, CA
Larry Kvols MD, Kjell Öberg MD,Thomas O'Dorisio MD, Rodney Pommier MD, Richard Warner MD, Eugene Woltering MD
- Carcinoid Tumors and Carcinoid Syndrome:
What they are, how they behave and how they are diagnosed
Presented by Richard R.P.Warner MD
Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and Clinical Associate Professor of Medicine, Weill Medical College of Cornell University , New York, NY, and Medical Director, Carcinoid Cancer Foundation, Inc.
- New Concepts in the Treatment of Carcinoid Turmors
What's New, What's Not, and What's Hot
Presented by Eugene A. Woltering MD
James D. Rives Professor of Surgery and Neuroscience at Louisiana State University Health Sciences Center
Chief of the Sections of Surgical Endocrinology and Surgical Oncology
Director of Surgery Research at Louisiana State University
- Peptides and Amines:
What are They and What do They do?
Presented by: Thomas M. O'Dorisio, M.D.
Professor: Department of Internal Medicine, Division of Endocrinology and Metabolism
University of Iowa
- The Role of Surgery and Chemobolization in the Management of Carcinoid
Presented by: Rodney Pommier, MD, FACS
Associate Professor of Surgery, Division of General Surgery, Section of Surgical Oncology
Oregon Health Sciences University
- Carcinoid Case Presentation and Discussion – The American Perspective
Dr. Richard R P Warner
Department of Medicine, Gastrointestinal Division, The Mount Sinai School of Medicine,
One Gustave L. Levy Place, New York, NY 10029, USA
Presented at the ENET meeting in London, May 2003
The rationale underlying an aggressive approach in the management of some carcinoid patients is explained and illustrated by the presented case of a middle-aged man with advanced classic typical midgut carcinoid. The patient exhibited somatostatin receptor scintigraphy positive massive liver metastases, Carcinoid Syndrome, severe tricuspid and pulmonic cardiac valve disease with congestive heart failure, ascites, and malnutrition. He had been treated for several years with supportive medications and biotherapy including octreotide and alpha interferon but his tumor eventually progressed and his overall condition was markedly deteriorated when he first sought more aggressive treatment. This consisted of prompt replacement of both tricuspid and pulmonic valves, followed by hepatic artery chemoembolus injection and then surgical tumor debulking including excision of the primary tumor in the small intestine. In addition, radiofrequency ablation was utilized to reduce the volume of metastases in the liver. Prophylactic cholecystectomy was also performed and a biopsy of tumor was submitted for cell culture drug resistance testing. This was followed by systemic chemotherapy utilizing the drug (docetaxel) which the in vitro studies suggested as most likely to be effective. His excellent response to this succession of treatments exemplifies the successful application of aggressive sequential multi-modality therapy.
- Diagnosing and Treating Carcinoid
Transcript of lecture from the METRO NY Carcinoid Support Group meeting
Sunday, April 27, 2003
Mt Sinai Hospital, NY
The Dana-Farber Experience
Guest Speaker: Matthew Kulke MD,
Assistant Professor of Medicine Department of Medical Oncology
Dana-Farber Cancer Institute, Boston
- METRO NY Carcinoid Support Group Tri-State Meeting
January 13, 2002
Mount Sinai Hospital, NYC
2002 Annual Update and Review of Carcinoid Disease
Presented by Richard R.P.Warner MD
Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and
Clinical Associate Professor of Medicine, Weill Medical College of Cornell University, New York, NY, and Medical Director, Carcinoid Cancer Foundation, Inc.
- Carcinoid Wellness Conference
March 9, 2002
Memorial Medical Center
New Orleans, LA
- "Introduction to the Basic Sciences of Carcinoid"
Presented by Eugene Woltering MD FACS
The James D. Rives Professor of Surgery and Neuro Sciencece
Chief, Section of Surgical Endocrinology,
Director Of Surgical Research The Louisiana State Health Science Center, New Orleans, LA
- "Current Concepts in the Medical Treatment of Carcinoid"
Presented by Lowell Anthony MD
Louisiana State University Med. Center
- Carcinoid Symposium 2002
April 12-13, 2002
Coordinated by Dianne Comstock, R.N., M.Ed. and Rhonda Ryan RN
Made possible by an educational grant from Norvartis Oncology
- Carciniod Tumors and the Carcinoid Syndrome:
"What's new in the therapeutic pipeline"
Presented by Larry K. Kvols MD
Professor of Medicine
H. Lee Moffitt Cancer Center & Research Institute, Tampa, FL
- Psychological Effects of Carcinoid Diseases:
A study for Carcinoid Patients and their caregivers
Presented by Elizabeth Soliday, PhD and Suzanne Smith, PhD
- "Coping with Carcinoid Diarrhea"
Presented by Valerie Bennett, RN
- Understanding Biochemial Markers
Presented by Nancy Gardner, Ph.D., AR
- National Carcinoid Symposium 2000
May 11, 2000
Coordinated by Dianne Comstock, R.N., M.Ed.
Made possible by an educational grant from Norvartis Oncology and sponsored by the The Wellness Community-Southwest Florida
"The Role of Sandostatin Analogue in the Reduction of Tumor Growth"
Presented by Eugene Woltering, M.D.
Louisiana State University Medical Center, New Orleans, Louisiana
- "Nutritional Concerns for the Carcinoid Patient"
Presented by Monica E. Warner, M.S., R.D., C.D.N.
Research Coordinator, Carcinoid Cancer Foundation, Inc., New York, New York
Carcinoid Cancer Foundation
333 Mamaroneck Avenue #492
White Plains, NY 10605