If my mother has carcinoid and I have symptoms similar to those of carcinoid, what tests should I have?
Only 1-2% of carcinoids are familial. If you have symptoms suggestive of carcinoid syndrome, the tests to do are urine 5-HIAA, blood serotonin, tryptophan and chromogranin A. All large commercial laboratories can do these tests and your family doctor can order them if s/he understands them, otherwise they can be ordered by an endocrinologist, oncologist or general internist. They are expensive, but often covered by most health insurance plans.
Carcinoid Cancer Foundation
333 Mamaroneck Avenue #492
White Plains, NY 10605