Neuroendocrine Tumors on TV: Rare Disease Day Special, February 28, 2017

February 28, 2017

NETs on TV!  The Carcinoid Cancer Foundation teamed up with The Balancing Act and Advanced Accelerator Applications to raise awareness about carcinoid and neuroendocrine tumors (NETs) during a feature on Lifetime TV on February 28 (Rare Disease Day)

READ MORE

Speaking Up: What Stands in the Way of Patient-Physician Conversation about Neuroendocrine Tumors and Carcinoid Syndrome

January 2, 2017

Members of the neuroendocrine tumor (NET) community are invited to attend an informal discussion, hosted by Lexicon Pharmaceuticals, about the barriers and opportunities in discussing NETs and carcinoid syndrome with your healthcare professional…

READ MORE

NET Cancer Blogger and Advocate Winner in WEGO Health Activist Awards — Best in Show Community

December 6, 2016

Congratulations to Ronny Allan, @NETCancerBlog, upon winning the 2016 WEGO Health Activist Award for Best in Show Community.  He was also a finalist in the Best in Show Blog category. The winners of the WEGO Health Activist Awards were announced on during…

READ MORE

Call for Nominations: 7th Annual Warner Advocacy Award

November 11, 2016

Novartis Oncology and The NET Alliance have announced that nominations are open for the 7th Annual Warner Advocacy Award. This annual award was established by Novartis in 2009 in honor of Monica Warner, who passed away in August 2009, to recognize the …

READ MORE

Join Our #14DaysOfGratitude

November 11, 2016

Check out our video Fighting NET Cancer with Grace & Gratitude and tell us about your appreciation for the things that matter most to you in the 14 days between NET Cancer Day and Thanksgiving.  Tell us about your friends, family, support group members,…

READ MORE

Project Zebra Report: Real-World Insights from the Carcinoid and NET Patient Community

November 10, 2016

In honor of Worldwide NET Cancer Awareness Day, we are pleased to release the first ever Project Zebra Report: Real-World Insights from the Carcinoid and Neuroendocrine Tumor Patient Community, a collaboration between our partner Self Care Catalysts

READ MORE

Carcinoid/Neuroendocrine Cancer Specialist Announces Retirement from Medical Practice

October 15, 2016

Dr. Richard R.P. Warner, Director of the Center for Carcinoid and Neuroendocrine Tumors at Mount Sinai Hospital, has announced that he is retiring from his medical practice at Mount Sinai, as of November 1, 2016. Read more

READ MORE

Stanford Health Care in California Launches Neuroendocrine Tumor Multidisciplinary Program

August 14, 2016

A new multidisciplinary Neuroendocrine Cancer center at Stanford Health Care in California has been established to improve the standard of care for NET patients and to advance the study of these rare diseases. Pamela Kunz, MD, is the Medical Director…

READ MORE

Carcinoid Cancer Foundation Announces Appointment of Edward M. Wolin, MD as Co-Medical Director and Board Member

June 24, 2016

Edward M. Wolin, MD, an internationally renowned neuroendocrine cancer specialist and medical oncologist, has been named Co-Medical Director and Board member of the Carcinoid Cancer Foundation (CCF) in White Plains, New York.  Dr. Wolin is Director

READ MORE

FDA Approves New Diagnostic Imaging Agent to Detect Rare Neuroendocrine Tumors

June 1, 2016

Breaking news on June 1, 2016 from the U.S. Food and Drug Administration! The FDA has approved NETSPOT, “the first kit for the preparation of gallium Ga 68 dotatate injection, a radioactive diagnostic agent for positron emission tomography (PET) imaging.”  …

READ MORE