Call for Nominations: 7th Annual Warner Advocacy Award

November 11, 2016

Novartis Oncology and The NET Alliance have announced that nominations are open for the 7th Annual Warner Advocacy Award. This annual award was established by Novartis in 2009 in honor of Monica Warner, who passed away in August 2009, to recognize the …


Join Our #14DaysOfGratitude

November 11, 2016

Check out our video Fighting NET Cancer with Grace & Gratitude and tell us about your appreciation for the things that matter most to you in the 14 days between NET Cancer Day and Thanksgiving.  Tell us about your friends, family, support group members,…


Stanford Health Care in California Launches Neuroendocrine Tumor Multidisciplinary Program

August 14, 2016

A new multidisciplinary Neuroendocrine Cancer center at Stanford Health Care in California has been established to improve the standard of care for NET patients and to advance the study of these rare diseases. Pamela Kunz, MD, is the Medical Director…


Carcinoid Cancer Foundation Announces Appointment of Edward M. Wolin, MD as Co-Medical Director and Board Member

June 24, 2016

Edward M. Wolin, MD, an internationally renowned neuroendocrine cancer specialist and medical oncologist, has been named Co-Medical Director and Board member of the Carcinoid Cancer Foundation (CCF) in White Plains, New York.  Dr. Wolin is Director


FDA Priority Review of Lexicon’s New Drug Application for Telotristat Etiprate Treatment for Carcinoid Syndrome

May 31, 2016

Lexicon Pharmaceuticals announced on May 31, 2016 that the U.S. Food and Drug Administration has accepted for filing the New Drug Application for telotristat etiprate, an oral drug for the treatment of CARCINOID SYNDROME. “The FDA has granted…


Ipsen Partners with CCF and Self Care Catalysts to Provide Free Support App for Neuroendocrine Tumor Patients

April 6, 2016

Ipsen Biopharmaceuticals has partnered with the Carcinoid Cancer Foundation and Self Care Catalysts to provide a digital patient support tool known as the Carcinoid NETs Health Storylines mobile and web application. Sponsored in part by Ipsen, the…


Lexicon Pharmaceuticals Submits New Drug Application for Telotristat Etiprate

April 3, 2016

Lexicon Pharmaceuticals has submitted a new drug application to the US Food and Drug Administration (FDA) for Telotristat Etiprate for the treatment of carcinoid syndrome.

For patients with carcinoid syndrome who are no longer responding to the current…


Breaking News about PRRT

March 23, 2016

Advanced Accelerator Applications (AAA) announced  on March 23, 2016 that the company has initiated an expanded access program (EAP) in the United States for the investigational product, Lutathera. Through the program Lutathera is being made available…


Finding an Outlet in the Face of Rare Cancers by Diane Reidy Lagunes, MD

March 16, 2016

Carcinoid/neuroendocrine cancer specialist Dr. Diane Reidy Lagunes, medical oncologist at Memorial Sloan Kettering Cancer Center in New York City, explains how her patients inspire her as a physician and why she participates in Cycle for Survival


Rare Disease Day 2016

February 29, 2016

February 29, 2016 is Rare Disease Day, an annual, international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The Carcinoid Cancer Foundation is proud to be a Rare Disease Day Partner.  Learn more here: …