Category: carcinoid


Carcinoid Syndrome Impact Survey Results to Be Presented During September 21 Webcast

September 14, 2016

Members of the carcinoid and neuroendocrine tumor community are invited to be the first to hear the results of the Carcinoid Syndrome Impact Survey that was conducted this summer.  A Webcast about the survey results will be presented on Wednesday, September

Project Zebra

Show Your Stripes by Contributing to Carcinoid and NET Research

August 17, 2016


Dear Friends,

Don’t miss this opportunity to Show Your Stripes by participating in the first ever Project Zebra: Real-World Patient Journey Research for Carcinoid and Neuroendocrine Tumors in the United States.

The Carcinoid Cancer Foundation…


Los Angeles Neuroendocrine Tumor Patient Education Conference 2016

June 14, 2016

Join neuroendocrine tumor (NET) patients and family members, NET cancer expert physicians, and members of the healthcare community on Saturday, June 25, 2016 for a free, one-day conference at Cedars-Sinai Medical Center in Los Angeles.  The conference…


New Survey for the Carcinoid Syndrome Community

June 7, 2016

Dear Friends,

We are excited to invite you to participate in the new Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patients’ lives, while also exploring physicians’ treatment…

Immunotherapy cells

News and Notes for the Carcinoid and Neuroendocrine Tumor Community, April 2016

April 25, 2016

Rare Neuroendocrine Skin Cancer Treated by Immunotherapy

Merkel cell carcinoma, a rare neuroendocrine virus-linked skin cancer, has been added to the list of cancers that can be treated by immunotherapy. Scientists who led the clinical study of the…

Oncolytic virus clinical trial, Uppsala

Oncolytic Virus Clinical Trial for Neuroendocrine Tumor Patients Begins at Uppsala University, Sweden

April 6, 2016

It is with great excitement that we share the announcement of the start of the AdVince clinical trial  for neuroendocrine cancer patients at Uppsala University in Sweden – the oncolytic virus is on its way to the first patient in the trial!!

From freezer…

Carcinoid_NET Specialists collage 2016

National Doctors’ Day 2016

March 30, 2016

March 30 is NATIONAL DOCTORS’ DAY. In recognition of carcinoid/neuroendocrine tumor (NET) doctors – you are our heroes and superheroes!! Pictured are some of the NET specialists throughout the United States.  Click here to see our Find a Doctor

Diane Reidy Lagunes, MD, Memorial Sloan Kettering_2

News and Notes for the Carcinoid and Neuroendocrine Tumor Community, March 2016

March 23, 2016

Breaking News from Advanced Accelerator Applications (AAA) about PRRT Treatment— Advanced Accelerator Applications announced on March 23 that the company has initiated an expanded access program (EAP) in the United States for the investigational…

Jonathan Strosberg on NETTER-1

Neuroendocrine Tumors to Be Focus of Presentations and Posters at ASCO Gastrointestinal Cancers Symposium

January 14, 2016

Presentations on recent advances in the treatment of neuroendocrine tumors (NETs) and new findings from the NETTER-1 clinical study on PRRT with Lutathera along with posters on a wide variety of subjects about NETs will be part of the program during the…

Jennifer Chan, MD and Matthew Kulke, MD

Neuroendocrine Tumors Focus of Upcoming Issue of Hematology/Oncology Clinics

November 27, 2015

Neuroendocrine Tumors will be featured in the February 2016 issue of Hematology/Oncology Clinics. Dr. Jennifer Chan and Dr. Matthew Kulke, both from Dana-Farber Cancer Institute in Boston, Massachusetts are Editors of the issue, published by Elsevier.…