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New Mobile Platform to Help Carcinoid Cancer and NET Patients Take Control of Their Rare Diseases

The Carcinoid Cancer Foundation and the patient intelligence health solution provider Self Care Catalysts have announced a new partnership to provide carcinoid and neuroendocrine tumor (NET) patients with a new mobile patient support tool. The Carcinoid NETs app will be made available free of charge early in 2015, accessible online through a desktop computer and as a mobile app which can be downloaded from the Google Play and Apple App Stores.  Read more

NET Patient's Perspective on Integrative Oncology

“A Patient’s Perspective on Integrative Oncology:  Getting Past the ‘War,’ Living with and Beyond Cancer” by Josh Mailman has been published in the November 2014 issue of the Journal of the National Cancer Institute Monographs focused on Integrative Oncology.  Diagnosed with a metastatic neuroendocrine tumor (NET) of the pancreas 8 years ago, Josh has chosen to combine conventional medical treatments for NETs with complementary care, including stress relief, managing fatigue following conventional  treatments, and diet. Read more

US Results from First Global NET Patient Survey

The Carcinoid Cancer Foundation and the Caring for Carcinoid Foundation, member organizations of the International Neuroendocrine Cancer Alliance (INCA), together with Novartis Pharmaceuticals Corporation, have announced US results from the first global survey of patients with neuroendocrine tumors (NETs). According to the survey, the vast majority (74%) of patients in the United States with NETs reported their quality of life was negatively affected by their disease. These quality-of-life findings are the first in a series of results from the survey being released in conjunction with Worldwide NET Cancer Awareness Day, November 10. Click here to read more.

CCF Awards Grant to Stanford University

The Carcinoid Cancer Foundation has awarded a grant of more than $65,000.00 to Stanford University in California to expand access to its Gallium-68 (Ga-68) DOTA-TATE PET/CT program for carcinoid and neuroendocrine tumor (NET) patients with somatostatin receptor positive tumors. Read more

Nutrition and Neuroendocrine Tumors

What is a healthy diet for neuroendocrine tumor patients? If a NET patient has carcinoid syndrome which foods should be avoided? Are supplements recommended for carcinoid/NET patients? When NET patients have problems related to malabsorption and various therapies, what changes should be made in their diet? These are among the many questions answered by Jeffrey I. Mechanick, MD and Leigh Anne Kamerman Burns, RD, CDN in the Carcinoid Cancer Foundation’s new video, Nutrition and Neuroendocrine Tumors.

Surgery and Treatment Options for NET Cancers

What are the surgical and treatment options for carcinoid and neuroendocrine tumor patients?  For patients with tumors that have spread to the liver which therapies should be used to improve quality and quantity of life?  How do patients benefit from clinical trials?  There is an explosion of technologies coming not only in the diagnostics but also in the treatments of these rare cancers.  View the latest video from the Carcinoid Cancer Foundation:http://bit.ly/VcJXgz